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Is nondirectiveness possible within the context of antenatal screening and testing?

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  • Williams, Clare
  • Alderson, Priscilla
  • Farsides, Bobbie

Abstract

Partly in order to dissociate itself from eugenics, genetic counselling values the principle of nondirectiveness as a key feature. Recent reports have upheld the importance of this approach, treating it unproblematically. However, doubts have been expressed about whether nondirective counselling is possible or indeed, desirable. Changes in organisational aspects of antenatal screening delivery in the UK have meant that genetic counselling is now being carried out by a variety of practitioners other than counsellors and specialists. These are often practitioners such as obstetricians and midwives who, in many other aspects of their work do not practise in a nondirective way. This paper explores some of the difficulties health practitioners encountered when attempting to work nondirectively. Reasons given by practitioners for not following this approach fell into categories, which in turn formed a continuum. Categories along the continuum ranged from acting directively at the request of women, through to deciding for women, either covertly or overtly, in their "best interests". It appears that for practitioners, the boundary between choice and coercion is not a clearcut one, and visualising it instead as a continuum may make it easier to see how slippage between choice and coercion can occur. The paper highlights the dilemmas which a variety of practitioners are dealing with in their daily work, in the hope of encouraging debate about these complex clinical and ethical issues.

Suggested Citation

  • Williams, Clare & Alderson, Priscilla & Farsides, Bobbie, 2002. "Is nondirectiveness possible within the context of antenatal screening and testing?," Social Science & Medicine, Elsevier, vol. 54(3), pages 339-347, February.
  • Handle: RePEc:eee:socmed:v:54:y:2002:i:3:p:339-347
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    Citations

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    Cited by:

    1. Vassy, Carine & Rosman, Sophia & Rousseau, Bénédicte, 2014. "From policy making to service use. Down's syndrome antenatal screening in England, France and the Netherlands," Social Science & Medicine, Elsevier, vol. 106(C), pages 67-74.
    2. Williams, Clare & Ehrich, Kathryn & Farsides, Bobbie & Scott, Rosamund, 2007. "Facilitating choice, framing choice: Staff views on widening the scope of preimplantation genetic diagnosis in the UK," Social Science & Medicine, Elsevier, vol. 65(6), pages 1094-1105, September.
    3. Williams, Clare, 2005. "Framing the fetus in medical work: rituals and practices," Social Science & Medicine, Elsevier, vol. 60(9), pages 2085-2095, May.
    4. Gammeltoft, Tine & Nguyen, Hanh Thi Thuy, 2007. "Fetal conditions and fatal decisions: Ethical dilemmas in ultrasound screening in Vietnam," Social Science & Medicine, Elsevier, vol. 64(11), pages 2248-2259, June.
    5. Ville, Isabelle & Mirlesse, Véronique, 2015. "Prenatal diagnosis: From policy to practice. Two distinct ways of managing prognostic uncertainty and anticipating disability in Brazil and in France," Social Science & Medicine, Elsevier, vol. 141(C), pages 19-26.
    6. Koch, Lene & Nordahl Svendsen, Mette, 2005. "Providing solutions-defining problems: the imperative of disease prevention in genetic counselling," Social Science & Medicine, Elsevier, vol. 60(4), pages 823-832, February.
    7. Graham, Ruth H. & Robson, Stephen C. & Rankin, Judith M., 2008. "Understanding feticide: An analytic review," Social Science & Medicine, Elsevier, vol. 66(2), pages 289-300, January.
    8. Ahmed, Shenaz & Bryant, Louise D. & Tizro, Zahra & Shickle, Darren, 2012. "Interpretations of informed choice in antenatal screening: A cross-cultural, Q-methodology study," Social Science & Medicine, Elsevier, vol. 74(7), pages 997-1004.

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