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A meta-synthesis of pregnant women's decision-making processes with regard to antenatal screening for Down syndrome

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  • Reid, Bernie
  • Sinclair, Marlene
  • Barr, Owen
  • Dobbs, Frank
  • Crealey, Grainne

Abstract

The diffusion of antenatal screening programmes for Down syndrome has triggered much discussion about their powerful potential to enhance pregnant women's autonomy and reproductive choices. Simultaneously, considerable debate has been engendered by concerns that such programmes may directly contribute to the emergence of new and complex ethical, legal and social dilemmas for women. Given such discussion and debate, an examination of women's decision-making within the context of antenatal screening for Down syndrome is timely. This paper aims to undertake a meta-synthesis of qualitative studies examining the factors influencing pregnant women's decisions to accept or decline antenatal screening for Down syndrome. The meta-synthesis aims to create more comprehensive understandings and to develop theory which might enable midwives and other healthcare professionals to better meet the needs of pregnant women as they make their screening decisions. Ten electronic health and social science databases were searched together with a hand-search of eleven journals for papers published in English between 1999 and 2008, using predefined search terms, inclusion and exclusion criteria, and a quality appraisal framework. Nine papers met the criteria for this meta-synthesis, providing an international perspective on pregnant women's decision-making. Twelve themes were identified by consensus and combined into five core concepts. These core concepts were: destination unknown; to choose or not to choose; risk is rarely pure and never simple; treading on dreams, and betwixt and between. A conceptual framework is proposed which incorporates these themes and core concepts, and provides a new insight into pregnant women's complex decision-making processes with regard to antenatal screening for Down syndrome. However, further research is necessary to determine whether or not the development of a model of decision-making may empower pregnant women in making choices about screening.

Suggested Citation

  • Reid, Bernie & Sinclair, Marlene & Barr, Owen & Dobbs, Frank & Crealey, Grainne, 2009. "A meta-synthesis of pregnant women's decision-making processes with regard to antenatal screening for Down syndrome," Social Science & Medicine, Elsevier, vol. 69(11), pages 1561-1573, December.
    • Handle: RePEc:eee:socmed:v:69:y:2009:i:11:p:1561-1573
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    References listed on IDEAS

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    1. Vassy, Carine & Rosman, Sophia & Rousseau, Bénédicte, 2014. "From policy making to service use. Down's syndrome antenatal screening in England, France and the Netherlands," Social Science & Medicine, Elsevier, vol. 106(C), pages 67-74.
    2. Raspberry, Kelly Amanda & Skinner, Debra, 2011. "Negotiating desires and options: How mothers who carry the fragile X gene experience reproductive decisions," Social Science & Medicine, Elsevier, vol. 72(6), pages 992-998, March.
    3. Hammer, Raphaël P. & Burton-Jeangros, Claudine, 2013. "Tensions around risks in pregnancy: A typology of women's experiences of surveillance medicine," Social Science & Medicine, Elsevier, vol. 93(C), pages 55-63.
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