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Fostering deliberations about health innovation: What do we want to know from publics?

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  • Lehoux, Pascale
  • Daudelin, Genevieve
  • Demers-Payette, Olivier
  • Boivin, Antoine

Abstract

As more complex and uncertain forms of health innovation keep emerging, scholars are increasingly voicing arguments in favour of public involvement in health innovation policy. The current conceptualisation of this involvement is, however, somewhat problematic as it tends to assume that scientific facts form a "hard," indisputable core around which "soft," relative values can be attached. This paper, by giving precedence to epistemological issues, explores what there is to know from public involvement. We argue that knowledge and normative assumptions are co-constitutive of each other and pivotal to the ways in which both experts and non-experts reason about health innovations. Because knowledge and normative assumptions are different but interrelated ways of reasoning, public involvement initiatives need to emphasise deliberative processes that maximise mutual learning within and across various groups of both experts and non-experts (who, we argue, all belong to the "publics"). Hence, we believe that what researchers might wish to know from publics is how their reasoning is anchored in normative assumptions (what makes a given innovation desirable?) and in knowledge about the plausibility of their effects (are they likely to be realised?). Accordingly, one sensible goal of greater public involvement in health innovation policy would be to refine normative assumptions and make their articulation with scientific observations explicit and openly contestable. The paper concludes that we must differentiate between normative assumptions and knowledge, rather than set up a dichotomy between them or confound them.

Suggested Citation

  • Lehoux, Pascale & Daudelin, Genevieve & Demers-Payette, Olivier & Boivin, Antoine, 2009. "Fostering deliberations about health innovation: What do we want to know from publics?," Social Science & Medicine, Elsevier, vol. 68(11), pages 2002-2009, June.
  • Handle: RePEc:eee:socmed:v:68:y:2009:i:11:p:2002-2009
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    2. Degeling, Chris & Carter, Stacy M. & Rychetnik, Lucie, 2015. "Which public and why deliberate? – A scoping review of public deliberation in public health and health policy research," Social Science & Medicine, Elsevier, vol. 131(C), pages 114-121.
    3. Kenter, Jasper O. & Reed, Mark S. & Fazey, Ioan, 2016. "The Deliberative Value Formation model," Ecosystem Services, Elsevier, vol. 21(PB), pages 194-207.
    4. Serapioni, Mauro & Matos, Ana Raquel, 2014. "Citizen participation and discontent in three Southern European health systems," Social Science & Medicine, Elsevier, vol. 123(C), pages 226-233.
    5. Lehoux, P. & Miller, F.A. & Williams-Jones, B., 2020. "Anticipatory governance and moral imagination: Methodological insights from a scenario-based public deliberation study," Technological Forecasting and Social Change, Elsevier, vol. 151(C).
    6. France Légaré & Antoine Boivin & Trudy van der Weijden & Christine Pakenham & Jako Burgers & Jean Légaré & Sylvie St-Jacques & Susie Gagnon, 2011. "Patient and Public Involvement in Clinical Practice Guidelines," Medical Decision Making, , vol. 31(6), pages 45-74, November.
    7. De Vries, Raymond & Stanczyk, Aimee & Wall, Ian F. & Uhlmann, Rebecca & Damschroder, Laura J. & Kim, Scott Y., 2010. "Assessing the quality of democratic deliberation: A case study of public deliberation on the ethics of surrogate consent for research," Social Science & Medicine, Elsevier, vol. 70(12), pages 1896-1903, June.

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