IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v264y2020ics0277953620305281.html
   My bibliography  Save this article

Longitudinal changes in well-being of parents of individuals with developmental or mental health problems

Author

Listed:
  • Sloan, Carlie J.
  • Mailick, Marsha R.
  • Hong, Jinkuk
  • Ha, Jung-Hwa
  • Greenberg, Jan S.
  • Almeida, David M.

Abstract

A large body of work demonstrates the impact of caregiving burden on the well-being of parents of individuals with developmental conditions or mental health problems. However, a relative dearth of research examines this impact longitudinally into parents' older age. Objective. The current study examines (1) longitudinal changes in the effect of having a child with a developmental or mental health problem on parental negative affect, psychological well-being, and somatic symptoms, (2) age and gender moderations on these effects, and (3) the unique impact of factors related to the child's condition. Method. This study employs hierarchical linear regression models to examine longitudinal survey data from midlife adults (N = 1,101) from two waves of the National Study of Midlife in the United States (MIDUS). Results. Models revealed some evidence for age attenuation of the impact of caregiving stress. Parents of children with developmental problems still had higher negative affect, poorer psychological well-being, and more somatic symptoms on average than parents in a comparison sample, whereas parents of children with mental health problems only showed evidence of higher negative affect compared to this sample. Within-group analyses also revealed differences between each parenting group into later adulthood. Conclusions. Parents of individuals with developmental or mental health problems may be at risk for poorer well-being late in life. Yet, age and gender differences as well as diagnostic group differences nuance these findings.

Suggested Citation

  • Sloan, Carlie J. & Mailick, Marsha R. & Hong, Jinkuk & Ha, Jung-Hwa & Greenberg, Jan S. & Almeida, David M., 2020. "Longitudinal changes in well-being of parents of individuals with developmental or mental health problems," Social Science & Medicine, Elsevier, vol. 264(C).
    • Handle: RePEc:eee:socmed:v:264:y:2020:i:c:s0277953620305281
    DOI: 10.1016/j.socscimed.2020.113309
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953620305281
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2020.113309?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Jieun Song & Marsha R. Mailick & Jan S. Greenberg & Carol D. Ryff & Margie E. Lachman, 2016. "Cognitive Aging in Parents of Children with Disabilities," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 71(5), pages 821-830.
    2. Martin Pinquart & Silvia Sörensen, 2006. "Gender Differences in Caregiver Stressors, Social Resources, and Health: An Updated Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 61(1), pages 33-45.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Song, Jieun & Mailick, Marsha R. & Greenberg, Jan S., 2018. "Health of parents of individuals with developmental disorders or mental health problems: Impacts of stigma," Social Science & Medicine, Elsevier, vol. 217(C), pages 152-158.
    2. Marissa M Rurka & J Jill Suitor & Megan Gilligan & Robert T Frase & Zhen Cong, 2023. "How Do Own and Siblings’ Genders Shape Caregivers’ Risk of Perceiving Care-Related Criticism From Siblings?," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 78(3), pages 520-531.
    3. Young Kyung Do & Edward C. Norton & Sally C. Stearns & Courtney Harold Van Houtven, 2015. "Informal Care and Caregiver's Health," Health Economics, John Wiley & Sons, Ltd., vol. 24(2), pages 224-237, February.
    4. Karen Siedlecki & Timothy Salthouse & Shigehiro Oishi & Sheena Jeswani, 2014. "The Relationship Between Social Support and Subjective Well-Being Across Age," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 117(2), pages 561-576, June.
    5. Chiu‐Yueh Hsiao, 2010. "Family demands, social support and caregiver burden in Taiwanese family caregivers living with mental illness: the role of family caregiver gender," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(23‐24), pages 3494-3503, December.
    6. Ángel L. Martín-Román & Alfonso Moral & Sara Pinillos-Franco, 2024. "Are women breaking the glass ceiling? A gendered analysis of the duration of sick leave in Spain," International Journal of Health Economics and Management, Springer, vol. 24(1), pages 107-134, March.
    7. Tokunaga, Mutsumi & Hashimoto, Hideki, 2017. "The socioeconomic within-gender gap in informal caregiving among middle-aged women: Evidence from a Japanese nationwide survey," Social Science & Medicine, Elsevier, vol. 173(C), pages 48-53.
    8. Christine Unson & Anuli Njoku & Stanley Bernard & Martin Agbalenyo, 2023. "Racial and Ethnic Disparities in Chronic Stress among Male Caregivers," IJERPH, MDPI, vol. 20(12), pages 1-13, June.
    9. Andrew Wister & Lun Li & Barbara Mitchell & Christina Wolfson & Jacqueline McMillan & Lauren E Griffith & Susan Kirkland & Parminder Raina & Laura Anderson & Cynthia Balion & Asada Yukiko & Nicole Bas, 2022. "Levels of Depression and Anxiety Among Informal Caregivers During the COVID-19 Pandemic: A Study Based on the Canadian Longitudinal Study on Aging [The psychological impact of COVID-19 pandemic and," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 77(9), pages 1740-1757.
    10. Peña-Longobardo, L.M. & Rodríguez-Sánchez, B. & Oliva-Moreno, J., 2021. "The impact of widowhood on wellbeing, health, and care use: A longitudinal analysis across Europe," Economics & Human Biology, Elsevier, vol. 43(C).
    11. Lawrence B. Sacco & Stefanie König & Hugo Westerlund & Loretta G. Platts, 2022. "Informal Caregiving and Quality of Life Among Older Adults: Prospective Analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 160(2), pages 845-866, April.
    12. Joukje Swinkels & Theo van Tilburg & Ellen Verbakel & Marjolein Broese van Groenou, 2019. "Explaining the Gender Gap in the Caregiving Burden of Partner Caregivers," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 74(2), pages 309-317.
    13. Rebecca E Lacey & Anne McMunn & Elizabeth Webb, 2018. "Informal caregiving and markers of adiposity in the UK Household Longitudinal Study," PLOS ONE, Public Library of Science, vol. 13(7), pages 1-15, July.
    14. Luo, Yanan & Yuan, Kexin & Li, Yuxiao & Liu, Yating & Pan, Yao, 2024. "The “spillover effect” of long-term care insurance in China on spouses’ health and well-being," Social Science & Medicine, Elsevier, vol. 340(C).
    15. Mizuno, Yuki & Hikichi, Hiroyuki & Noguchi, Masayuki & Kawachi, Ichiro & Takao, Soshi, 2019. "Reciprocity of social support is associated with psychological distress and suicidal ideation in older Japanese people: A population-based study," Social Science & Medicine, Elsevier, vol. 230(C), pages 131-137.
    16. Penkunas, Michael James & Eom, Kirsten Yuna & Chan, Angelique Wei-Ming, 2017. "Classification trees for identifying non-use of community-based long-term care services among older adults," Health Policy, Elsevier, vol. 121(10), pages 1093-1099.
    17. Takashi Oshio & Kemmyo Sugiyama, 2022. "Social Participation as a Moderator for Caregivers’ Psychological Distress: a Dynamic Panel Data Model Analysis in Japan," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 17(3), pages 1813-1829, June.
    18. Abrahamsen, Signe A. & Grøtting, Maja Weemes, 2019. "Formal Care of the Elderly and Health Outcomes Among Adult Daughters," Working Papers in Economics 2/19, University of Bergen, Department of Economics.
    19. Dörte Heger, 2017. "The Mental Health of Children Providing Care to their Elderly Parent," Health Economics, John Wiley & Sons, Ltd., vol. 26(12), pages 1617-1629, December.
    20. Mendez-Luck, Carolyn A. & Kennedy, David P. & Wallace, Steven P., 2009. "Guardians of health: The dimensions of elder caregiving among women in a Mexico City neighborhood," Social Science & Medicine, Elsevier, vol. 68(2), pages 228-234, January.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:264:y:2020:i:c:s0277953620305281. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.