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Doing patient-centredness versus achieving public health targets: A critical review of interactional dilemmas in ART adherence support

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  • de Kok, B.C.
  • Widdicombe, S.
  • Pilnick, A.
  • Laurier, E.

Abstract

Anti-retroviral Therapy (ART) transformed HIV into a chronic disease but its individual and public health benefits depend on high levels of adherence. The large and rising number of people on ART, now also used as prevention, puts considerable strain on health systems and providers in low and middle as well as high-income countries, which are our focus here. Delivering effective adherence support is thus crucial but challenging, especially given the promotion of patient-centredness and shared decision making in HIV care. To illuminate the complexities of ART adherence support delivered in and through clinical encounters, we conducted a multi-disciplinary interpretative literature review. We reviewed and synthesized 82 papers published post 1997 (when ART was introduced) belonging to three bodies of literature: public health and psychological studies of ART communication; anthropological and sociological studies of ART; and conversation analytic studies of patient-centredness and shared decision-making. We propose three inter-related tensions which make patient-centredness particularly complex in this infectious disease context: achieving trust versus probing about adherence; patient-centredness versus reaching public health targets; and empowerment versus responsibilisation as ‘therapeutic citizens’. However, there is a dearth of evidence concerning how precisely ART providers implement patient-centredness, shared-decision making in practice, and enact trust and therapeutic citizenship. We show how conversation analysis could lead to new, actionable insights in this respect.

Suggested Citation

  • de Kok, B.C. & Widdicombe, S. & Pilnick, A. & Laurier, E., 2018. "Doing patient-centredness versus achieving public health targets: A critical review of interactional dilemmas in ART adherence support," Social Science & Medicine, Elsevier, vol. 205(C), pages 17-25.
    • Handle: RePEc:eee:socmed:v:205:y:2018:i:c:p:17-25
    DOI: 10.1016/j.socscimed.2018.03.030
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    References listed on IDEAS

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    1. Stevenson, Fiona A. & Barry, Christine A. & Britten, Nicky & Barber, Nick & Bradley, Colin P., 2000. "Doctor-patient communication about drugs: the evidence for shared decision making," Social Science & Medicine, Elsevier, vol. 50(6), pages 829-840, March.
    2. Pilnick, Alison & Dingwall, Robert, 2011. "On the remarkable persistence of asymmetry in doctor/patient interaction: A critical review," Social Science & Medicine, Elsevier, vol. 72(8), pages 1374-1382, April.
    3. Pilnick, Alison, 2003. ""Patient counselling" by pharmacists: four approaches to the delivery of counselling sequences and their interactional reception," Social Science & Medicine, Elsevier, vol. 56(4), pages 835-849, February.
    4. Pilnick, Alison & Coleman, Tim, 2003. ""I'll give up smoking when you get me better": patients' resistance to attempts to problematise smoking in general practice (GP) consultations," Social Science & Medicine, Elsevier, vol. 57(1), pages 135-145, July.
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    Cited by:

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    2. Hurley, Emily A. & Odeny, Beryne & Wexler, Catherine & Brown, Melinda & MacKenzie, Alexander & Goggin, Kathy & Maloba, May & Gautney, Brad & Finocchario-Kessler, Sarah, 2020. "“It was my obligation as mother”: 18-Month completion of Early Infant Diagnosis as identity control for mothers living with HIV in Kenya," Social Science & Medicine, Elsevier, vol. 250(C).
    3. Thirlway, Frances & Nyamurungi, Kellen Namusisi & Matovu, Joseph K.B. & Miti, Andrew Kibuuka & Mdege, Noreen Dadirai, 2021. "Tobacco use and cessation in the context of ART adherence: Insights from a qualitative study in HIV clinics in Uganda," Social Science & Medicine, Elsevier, vol. 273(C).
    4. Gilbert, Patrick & Laporte, Marie-Eve, 2022. "War and peace in hospitals: Humans, objects and paradoxes," Journal of Business Research, Elsevier, vol. 141(C), pages 253-263.

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