IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v205y2018icp17-25.html
   My bibliography  Save this article

Doing patient-centredness versus achieving public health targets: A critical review of interactional dilemmas in ART adherence support

Author

Listed:
  • de Kok, B.C.
  • Widdicombe, S.
  • Pilnick, A.
  • Laurier, E.

Abstract

Anti-retroviral Therapy (ART) transformed HIV into a chronic disease but its individual and public health benefits depend on high levels of adherence. The large and rising number of people on ART, now also used as prevention, puts considerable strain on health systems and providers in low and middle as well as high-income countries, which are our focus here. Delivering effective adherence support is thus crucial but challenging, especially given the promotion of patient-centredness and shared decision making in HIV care. To illuminate the complexities of ART adherence support delivered in and through clinical encounters, we conducted a multi-disciplinary interpretative literature review. We reviewed and synthesized 82 papers published post 1997 (when ART was introduced) belonging to three bodies of literature: public health and psychological studies of ART communication; anthropological and sociological studies of ART; and conversation analytic studies of patient-centredness and shared decision-making. We propose three inter-related tensions which make patient-centredness particularly complex in this infectious disease context: achieving trust versus probing about adherence; patient-centredness versus reaching public health targets; and empowerment versus responsibilisation as ‘therapeutic citizens’. However, there is a dearth of evidence concerning how precisely ART providers implement patient-centredness, shared-decision making in practice, and enact trust and therapeutic citizenship. We show how conversation analysis could lead to new, actionable insights in this respect.

Suggested Citation

  • de Kok, B.C. & Widdicombe, S. & Pilnick, A. & Laurier, E., 2018. "Doing patient-centredness versus achieving public health targets: A critical review of interactional dilemmas in ART adherence support," Social Science & Medicine, Elsevier, vol. 205(C), pages 17-25.
    • Handle: RePEc:eee:socmed:v:205:y:2018:i:c:p:17-25
    DOI: 10.1016/j.socscimed.2018.03.030
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953618301485
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2018.03.030?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Stevenson, Fiona A. & Barry, Christine A. & Britten, Nicky & Barber, Nick & Bradley, Colin P., 2000. "Doctor-patient communication about drugs: the evidence for shared decision making," Social Science & Medicine, Elsevier, vol. 50(6), pages 829-840, March.
    2. Pilnick, Alison & Coleman, Tim, 2003. ""I'll give up smoking when you get me better": patients' resistance to attempts to problematise smoking in general practice (GP) consultations," Social Science & Medicine, Elsevier, vol. 57(1), pages 135-145, July.
    3. Pilnick, Alison & Dingwall, Robert, 2011. "On the remarkable persistence of asymmetry in doctor/patient interaction: A critical review," Social Science & Medicine, Elsevier, vol. 72(8), pages 1374-1382, April.
    4. Pilnick, Alison, 2003. ""Patient counselling" by pharmacists: four approaches to the delivery of counselling sequences and their interactional reception," Social Science & Medicine, Elsevier, vol. 56(4), pages 835-849, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Hurley, Emily A. & Odeny, Beryne & Wexler, Catherine & Brown, Melinda & MacKenzie, Alexander & Goggin, Kathy & Maloba, May & Gautney, Brad & Finocchario-Kessler, Sarah, 2020. "“It was my obligation as mother”: 18-Month completion of Early Infant Diagnosis as identity control for mothers living with HIV in Kenya," Social Science & Medicine, Elsevier, vol. 250(C).
    2. Gilbert, Patrick & Laporte, Marie-Eve, 2022. "War and peace in hospitals: Humans, objects and paradoxes," Journal of Business Research, Elsevier, vol. 141(C), pages 253-263.
    3. Patrick Gilbert & Marie-Eve Laporte, 2022. "L’orientation patient à l’hôpital public : un dispositif marketing comme compromis entre mondes," Post-Print halshs-03737724, HAL.
    4. Thirlway, Frances & Nyamurungi, Kellen Namusisi & Matovu, Joseph K.B. & Miti, Andrew Kibuuka & Mdege, Noreen Dadirai, 2021. "Tobacco use and cessation in the context of ART adherence: Insights from a qualitative study in HIV clinics in Uganda," Social Science & Medicine, Elsevier, vol. 273(C).

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. May, Carl & Rapley, Tim & Moreira, Tiago & Finch, Tracy & Heaven, Ben, 2006. "Technogovernance: Evidence, subjectivity, and the clinical encounter in primary care medicine," Social Science & Medicine, Elsevier, vol. 62(4), pages 1022-1030, February.
    2. Solomon, Josie & Knapp, Peter & Raynor, D.K. & Atkin, Karl, 2013. "Worlds apart? An exploration of prescribing and medicine-taking decisions by patients, GPs and local policy makers," Health Policy, Elsevier, vol. 112(3), pages 264-272.
    3. Paraponaris, A. & Verger, P. & Desquins, B. & Villani, P. & Bouvenot, G. & Rochaix, L. & Gourheux, J. C. & Moatti, J. P. AU -, 2004. "Delivering generics without regulatory incentives?: Empirical evidence from French general practitioners about willingness to prescribe international non-proprietary names," Health Policy, Elsevier, vol. 70(1), pages 23-32, October.
    4. Llanwarne, Nadia & Newbould, Jennifer & Burt, Jenni & Campbell, John L. & Roland, Martin, 2017. "Wasting the doctor's time? A video-elicitation interview study with patients in primary care," Social Science & Medicine, Elsevier, vol. 176(C), pages 113-122.
    5. Stefan Stremersch & Vardit Landsman & Sriram Venkataraman, 2013. "The Relationship Between DTCA, Drug Requests, and Prescriptions: Uncovering Variation in Specialty and Space," Marketing Science, INFORMS, vol. 32(1), pages 89-110, June.
    6. Wheat, H. & Barnes, R.K. & Aveyard, P. & Stevenson, F. & Begh, R., 2022. "Brief opportunistic interventions by general practitioners to promote smoking cessation: A conversation analytic study," Social Science & Medicine, Elsevier, vol. 314(C).
    7. Armstrong, David, 2023. "The social life of risk probabilities in medicine," Social Science & Medicine, Elsevier, vol. 323(C).
    8. Murdoch, Jamie & Salter, Charlotte & Ford, John & Lenaghan, Elizabeth & Shiner, Alice & Steel, Nicholas, 2020. "The “unknown territory” of goal-setting: Negotiating a novel interactional activity within primary care doctor-patient consultations for patients with multiple chronic conditions," Social Science & Medicine, Elsevier, vol. 256(C).
    9. Greenfield, Geva & Pliskin, Joseph S. & Feder-Bubis, Paula & Wientroub, Shlomo & Davidovitch, Nadav, 2012. "Patient–physician relationships in second opinion encounters – The physicians’ perspective," Social Science & Medicine, Elsevier, vol. 75(7), pages 1202-1212.
    10. Daker-White, Gavin & Rogers, Anne & Kennedy, Anne & Blakeman, Thomas & Blickem, Christian & Chew-Graham, Carolyn, 2015. "Non-disclosure of chronic kidney disease in primary care and the limits of instrumental rationality in chronic illness self-management," Social Science & Medicine, Elsevier, vol. 131(C), pages 31-39.
    11. Kath MacDonald & Lindesay Irvine & Margaret Coulter Smith, 2015. "An exploration of partnership through interactions between young ‘expert’ patients with cystic fibrosis and healthcare professionals," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(23-24), pages 3528-3537, December.
    12. Jennifer Chamberlain-Salaun & Kim Usher & Jane Mills, 2020. "Outsiders in the Experts’ World: A Grounded Theory Study of Consumers and the Social World of Health Care," SAGE Open, , vol. 10(1), pages 21582440209, January.
    13. Ayuandini, Sherria, 2017. "Finger Pricks and Blood Vials: How doctors medicalize ‘cultural’ solutions to demedicalize the ‘broken’ hymen in the Netherlands," Social Science & Medicine, Elsevier, vol. 177(C), pages 61-68.
    14. Toerien, Merran, 2021. "When do patients exercise their right to refuse treatment? A conversation analytic study of decision-making trajectories in UK neurology outpatient consultations," Social Science & Medicine, Elsevier, vol. 290(C).
    15. Rodrigues, Carla F., 2021. "Communicative trust in therapeutic encounters: users’ experiences in public healthcare facilities and community pharmacies in Maputo, Mozambique," Social Science & Medicine, Elsevier, vol. 291(C).
    16. Swinglehurst, Deborah, 2014. "Displays of authority in the clinical consultation: A linguistic ethnographic study of the electronic patient record," Social Science & Medicine, Elsevier, vol. 118(C), pages 17-26.
    17. Liberati, Elisa Giulia & Gorli, Mara & Moja, Lorenzo & Galuppo, Laura & Ripamonti, Silvio & Scaratti, Giuseppe, 2015. "Exploring the practice of patient centered care: The role of ethnography and reflexivity," Social Science & Medicine, Elsevier, vol. 133(C), pages 45-52.
    18. Goldsmith, Laurie J. & Kolhatkar, Ashra & Popowich, Dominic & Holbrook, Anne M. & Morgan, Steven G. & Law, Michael R., 2017. "Understanding the patient experience of cost-related non-adherence to prescription medications through typology development and application," Social Science & Medicine, Elsevier, vol. 194(C), pages 51-59.
    19. Fraser, Suzanne & Fomiatti, Renae & Moore, David & Seear, Kate & Aitken, Campbell, 2020. "Is another relationship possible? Connoisseurship and the doctor–patient relationship for men who consume performance and image-enhancing drugs," Social Science & Medicine, Elsevier, vol. 246(C).
    20. Rosalind Waller & Michael Tholander & Doris Nilsson, 2017. "‘You Will Have These Ones!’: Six Women’s Experiences of Being Pressured to Make a Contraceptive Choice That Did Not Feel Right," Social Sciences, MDPI, vol. 6(4), pages 1-14, September.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:205:y:2018:i:c:p:17-25. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.