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Reconciling community-based Indigenous research and academic practices: Knowing principles is not always enough

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  • Morton Ninomiya, Melody E.
  • Pollock, Nathaniel J.

Abstract

Historically, Indigenous health research in Canada has failed to engage Indigenous peoples and communities as primary stakeholders of research evidence. Increasingly, research ethics and methodologies are being positioned as tools for Indigenous self-determination. In response, mainstream institutions have developed new ethical principles for research involving Indigenous people. While these transformations are necessary steps towards re-orienting research practices, they are not prescriptive. In this paper, we make visible three dilemmas from a case study in which Indigenous health research frameworks provided limited guidance or were unclear about how to balance community priorities with Indigenous research principles. We also discuss the strategies used to resolve each of these dilemmas.

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  • Morton Ninomiya, Melody E. & Pollock, Nathaniel J., 2017. "Reconciling community-based Indigenous research and academic practices: Knowing principles is not always enough," Social Science & Medicine, Elsevier, vol. 172(C), pages 28-36.
    • Handle: RePEc:eee:socmed:v:172:y:2017:i:c:p:28-36
    DOI: 10.1016/j.socscimed.2016.11.007
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    1. Cunsolo Willox, Ashlee & Harper, Sherilee L. & Ford, James D. & Landman, Karen & Houle, Karen & Edge, Victoria L., 2012. "“From this place and of this place:” Climate change, sense of place, and health in Nunatsiavut, Canada," Social Science & Medicine, Elsevier, vol. 75(3), pages 538-547.
    2. Neuwelt, Pat M. & Kearns, Robin A. & Hunter, Duncan J. W. & Batten, Jane, 1992. "Ethnicity, morbidity and health service utilization in two labrador communities," Social Science & Medicine, Elsevier, vol. 34(2), pages 151-160, January.
    3. Blackstock, Cindy, 2011. "The Canadian Human Rights Tribunal on First Nations Child Welfare: Why if Canada wins, equality and justice lose," Children and Youth Services Review, Elsevier, vol. 33(1), pages 187-194, January.
    4. Bartlett, Judith G. & Iwasaki, Yoshitaka & Gottlieb, Benjamin & Hall, Darlene & Mannell, Roger, 2007. "Framework for Aboriginal-guided decolonizing research involving Métis and First Nations persons with diabetes," Social Science & Medicine, Elsevier, vol. 65(11), pages 2371-2382, December.
    5. Pollock, N.J. & Mulay, S. & Valcour, J. & Jong, M., 2016. "Suicide rates in aboriginal communities in Labrador, Canada," American Journal of Public Health, American Public Health Association, vol. 106(7), pages 1309-1315.
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