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“You get to know the people and whether they’re talking sense or not”: Negotiating trust on health-related forums

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  • Brady, Ellen
  • Segar, Julia
  • Sanders, Caroline

Abstract

The internet is increasingly being used as a source of health advice and information by individuals with long term conditions (LTCs). Specifically, online forums allow people to interact with others with similar conditions. However, it is not clear how online health information is assessed by those with LTCs. This study aims to address this gap by exploring how individuals with contested and uncontested LTCs utilise internet forums. Semi-structured interviews were conducted with 20 participants with ME/CFS and 21 participants with type 1 and 2 diabetes and analysed using thematic analysis. Participants were recruited via online and offline routes, namely forums, email lists, newsletters, and face-to-face support groups. The findings indicate that the use of online forums was a complex and nuanced process and was influenced by a number of individual and illness-specific factors. Participants trusted those with similar experiences and perspectives as themselves, while also valuing conventional biomedical information and advice. By accessing support online, forum users were able to draw on a personalised form of support based on the lived experiences of their peers. However, the role of digital literacy in developing and maintaining online relationships must be acknowledged.

Suggested Citation

  • Brady, Ellen & Segar, Julia & Sanders, Caroline, 2016. "“You get to know the people and whether they’re talking sense or not”: Negotiating trust on health-related forums," Social Science & Medicine, Elsevier, vol. 162(C), pages 151-157.
    • Handle: RePEc:eee:socmed:v:162:y:2016:i:c:p:151-157
    DOI: 10.1016/j.socscimed.2016.06.029
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    References listed on IDEAS

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    1. Cotten, Shelia R & Gupta, Sipi S, 2004. "Characteristics of online and offline health information seekers and factors that discriminate between them," Social Science & Medicine, Elsevier, vol. 59(9), pages 1795-1806, November.
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    1. Menon, Alka V., 2017. "Do online reviews diminish physician authority? The case of cosmetic surgery in the U.S," Social Science & Medicine, Elsevier, vol. 181(C), pages 1-8.

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