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Information science and the inevitable: A literature review at the intersection of death and information management: An Annual Review of Information Science and Technology (ARIST) paper

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  • Jesse David Dinneen
  • Maja Krtalić
  • Nilou Davoudi
  • Helene Hellmich
  • Catharina Ochsner
  • Paulina Bressel

Abstract

Death is an inevitable part of life and highly relevant to information management: its approach often requires preparation, and its occurrence often demands a response. Many works in information science have acknowledged so much, and yet death is rarely a focused topic, appearing instead sporadically and disconnected across research. As a result there is no introduction to, overview of, or synthesis across studies on death and information. We therefore conducted an extensive literature search and reviewed nearly 300 scholarly publications at the intersection of death and information (and data) management. Covering seven topics in total, we review two groups of work directly engaging information management in relation to death (digital possessions, inheritance, and legacy; information behavior, needs, and practices around death), three engaging death and technology that require information and its management (death and the Internet, thanatosensitive design and technology‐augmented death practices, and the digital afterlife and digital immortality), and two reflecting the ethical and legal dimensions unique to death and information. We then integrate the collective findings to summarize the landscape of death‐related information research, outline remaining challenges for individuals, families, institutions, and society, and identify promising directions for future information science research.

Suggested Citation

  • Jesse David Dinneen & Maja Krtalić & Nilou Davoudi & Helene Hellmich & Catharina Ochsner & Paulina Bressel, 2024. "Information science and the inevitable: A literature review at the intersection of death and information management: An Annual Review of Information Science and Technology (ARIST) paper," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 75(3), pages 268-297, March.
  • Handle: RePEc:bla:jinfst:v:75:y:2024:i:3:p:268-297
    DOI: 10.1002/asi.24861
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    References listed on IDEAS

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    1. Debra J. Bassett, 2015. "Who Wants to Live Forever? Living, Dying and Grieving in Our Digital Society," Social Sciences, MDPI, vol. 4(4), pages 1-13, November.
    2. Carl Öhman & Luciano Floridi, 2018. "An ethical framework for the digital afterlife industry," Nature Human Behaviour, Nature, vol. 2(5), pages 318-320, May.
    3. Amber L. Cushing, 2023. "PIM as a caring: Using ethics of care to explore personal information management as a caring process," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 74(11), pages 1282-1292, November.
    4. Donald O. Case, 2008. "Collection of family health histories: The link between genealogy and public health," Journal of the American Society for Information Science and Technology, Association for Information Science & Technology, vol. 59(14), pages 2312-2319, December.
    5. Jesse David Dinneen & Charles‐Antoine Julien, 2020. "The ubiquitous digital file: A review of file management research," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 71(1), pages 1-32, January.
    6. Amber L. Cushing & Páraic Kerrigan, 2022. "Personal information management burden: A framework for describing nonwork personal information management in the context of inequality," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 73(11), pages 1543-1558, November.
    7. Kutner, Jean S & Steiner, John F & Corbett, Kitty K & Jahnigen, Dennis W & Barton, Phoebe L, 1999. "Information needs in terminal illness," Social Science & Medicine, Elsevier, vol. 48(10), pages 1341-1352, May.
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