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Ethical community-engaged research: A literature review

Author

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  • Mikesell, L.
  • Bromley, E.
  • Khodyakov, D.

Abstract

Health research has relied on ethical principles, such as those of the Belmont Report, to protect the rights and well-being of research participants. Community-based participatory research (CBPR), however, must also consider the rights and wellbeing of communities. This requires additional ethical considerations that have been extensively discussed but not synthesized in the CBPR literature. We conducted a comprehensive thematic literature review and summarized empirically grounded discussions of ethics in CBPR, with a focus on the value of the Belmont principles in CBPR, additional essential components of ethical CBPR, the ethical challenges CBPR practitioners face, and strategies to ensure that CBPR meets ethical standards. Our study provides a foundation for developing a working definition and a conceptual model of ethical CBPR.

Suggested Citation

  • Mikesell, L. & Bromley, E. & Khodyakov, D., 2013. "Ethical community-engaged research: A literature review," American Journal of Public Health, American Public Health Association, vol. 103(12), pages 7-14.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2013.301605_4
    DOI: 10.2105/AJPH.2013.301605
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    Cited by:

    1. Chouinard, Jill Anne & Milley, Peter, 2018. "Uncovering the mysteries of inclusion: Empirical and methodological possibilities in participatory evaluation in an international context," Evaluation and Program Planning, Elsevier, vol. 67(C), pages 70-78.
    2. Huaiyun Kou & Sichu Zhang & Yuelai Liu, 2019. "Community-Engaged Research for the Promotion of Healthy Urban Environments: A Case Study of Community Garden Initiative in Shanghai, China," IJERPH, MDPI, vol. 16(21), pages 1-24, October.
    3. Corrine Nöel Knapp & Robin S. Reid & María E. Fernández-Giménez & Julia A. Klein & Kathleen A. Galvin, 2019. "Placing Transdisciplinarity in Context: A Review of Approaches to Connect Scholars, Society and Action," Sustainability, MDPI, vol. 11(18), pages 1-25, September.
    4. Payam Sheikhattari & Emma Shaffer & Rifath Ara Alam Barsha & Gillian Beth Silver & Bethtrice Elliott & Christina Delgado & Paula Purviance & Valerie Odero-Marah & Yvonne Bronner, 2022. "Building Capacity for Community-Academia Research Partnerships by Establishing a Physical Infrastructure for Community Engagement: Morgan CARES," IJERPH, MDPI, vol. 19(19), pages 1-16, September.
    5. Ooms, Tahnee & Klaser, Klaudijo & Ishkanian, Armine, 2023. "The role of academia practice partnerships in the well-being economy: Retracing synergies between health and social sciences using bibliometric analysis," Health Policy, Elsevier, vol. 138(C).
    6. Annie Miller & Julie Laser & Annjanette Alejano-Steele & Kara Napolitano & Nevita George & Natcha Connot & Amanda Finger, 2023. "Lessons Learned from the Colorado Project to Comprehensively Combat Human Trafficking," Societies, MDPI, vol. 13(3), pages 1-17, February.

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