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Paradigm shifts in disability and health: Toward more ethical public health research

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  • McDonald, K.E.
  • Raymaker, D.M.

Abstract

Disability is often considered a health outcome disproportionately experienced byminority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address ethical challenges and promote safe, respectful public health research. Examples include applying human rights frameworks, providing accommodations, attending to power, countering legacies of deficits-based models of disability, and transforming access to science more broadly. Collectively, these strategies can encourage broader engagement in safe, respectful, inclusive public health research aimed at promoting the health and well-being of people with developmental disabilities.

Suggested Citation

  • McDonald, K.E. & Raymaker, D.M., 2013. "Paradigm shifts in disability and health: Toward more ethical public health research," American Journal of Public Health, American Public Health Association, vol. 103(12), pages 2165-2173.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2013.301286_8
    DOI: 10.2105/AJPH.2013.301286
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    Cited by:

    1. Wen-Chou Chi & Kwang-Hwa Chang & Reuben Escorpizo & Chia-Feng Yen & Hua-Fang Liao & Feng-Hang Chang & Hung-Yi Chiou & Sue-Wen Teng & Wen-Ta Chiu & Tsan-Hon Liou, 2014. "Measuring Disability and Its Predicting Factors in a Large Database in Taiwan Using the World Health Organization Disability Assessment Schedule 2.0," IJERPH, MDPI, vol. 11(12), pages 1-14, November.
    2. Dora M. Raymaker, 2016. "Intersections of Critical Systems Thinking and Community Based Participatory Research: A Learning Organization Example with the Autistic Community," Systemic Practice and Action Research, Springer, vol. 29(5), pages 405-423, October.
    3. Bell, Charles & Craig, Miltonette Olivia, 2023. "Suspended, restrained, and secluded: Exploring the relationship between school punishment, disability, and black and white parents’ health outcomes," Children and Youth Services Review, Elsevier, vol. 153(C).

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