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Challenging assumptions about minority participation in US clinical research

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  • Fisher, J.A.
  • Kalbaugh, C.A.

Abstract

Although extensive research addresses minorities' low participation in clinical research, most focuses almost exclusively on therapeutic trials. The existing literature might mask important issues concerning minorities' participation in clinical trials, and minorities might actually be overrepresented in phase I safety studies that require the participation of healthy volunteers. It is critical to consider the entire spectrum of clinical research when discussing the participation of disenfranchised groups; the literature on minorities' distrust, poor access, and other barriers to trial participation needs reex-amination. Minority participation in clinical trials is an important topic in public health discussions because this representation touches on issues of equality and the elimination of disparities, which are core values of the field.

Suggested Citation

  • Fisher, J.A. & Kalbaugh, C.A., 2011. "Challenging assumptions about minority participation in US clinical research," American Journal of Public Health, American Public Health Association, vol. 101(12), pages 2217-2222.
  • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2011.300279_5
    DOI: 10.2105/AJPH.2011.300279
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    Cited by:

    1. Mwale, Shadreck, 2020. "‘Becoming-with’ a repeat healthy volunteer: Managing and negotiating trust among repeat healthy volunteers in commercial clinical drug trials," Social Science & Medicine, Elsevier, vol. 245(C).
    2. Alana Smith & Gregory A. Vidal & Elizabeth Pritchard & Ryan Blue & Michelle Y. Martin & LaShanta J. Rice & Gwendolynn Brown & Athena Starlard-Davenport, 2018. "Sistas Taking a Stand for Breast Cancer Research (STAR) Study: A Community-Based Participatory Genetic Research Study to Enhance Participation and Breast Cancer Equity among African American Women in ," IJERPH, MDPI, vol. 15(12), pages 1-12, December.
    3. Lorraine Greaves & Andreea C. Brabete & Mira Maximos & Ella Huber & Alice Li & Mê-Linh Lê & Sherif Eltonsy & Madeline Boscoe, 2023. "Sex, Gender, and the Regulation of Prescription Drugs: Omissions and Opportunities," IJERPH, MDPI, vol. 20(4), pages 1-19, February.
    4. Mulinari, Shai & Vilhelmsson, Andreas & Ozieranski, Piotr & Bredström, Anna, 2021. "Is there evidence for the racialization of pharmaceutical regulation? Systematic comparison of new drugs approved over five years in the USA and the EU," Social Science & Medicine, Elsevier, vol. 280(C).
    5. William T. Hu & Stephanie M. Bergren & Dana K. Dychtwald & Yiming Ma & XinQi Dong, 2023. "Variations in racial and ethnic groups’ trust in researchers associated with willingness to participate in research," Palgrave Communications, Palgrave Macmillan, vol. 10(1), pages 1-10, December.
    6. Torin Monahan & Jill A Fisher, 2020. "Sacrificial Labour: Social Inequality, Identity Work, and the Damaging Pursuit of Elusive Futures," Work, Employment & Society, British Sociological Association, vol. 34(3), pages 441-456, June.
    7. Shim, Janet K. & Bentz, Michael & Vasquez, Emily & Jeske, Melanie & Saperstein, Aliya & Fullerton, Stephanie M. & Foti, Nicole & McMahon, Caitlin & Lee, Sandra Soo-Jin, 2022. "Strategies of inclusion: The tradeoffs of pursuing “baked in” diversity through place-based recruitment," Social Science & Medicine, Elsevier, vol. 306(C).

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