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Health advocacy organizations and the pharmaceutical industry: an analysis of disclosure practices

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  • Rothman, S.M.
  • Raveis, V.H.
  • Friedman, A.
  • Rothman, D.J.

Abstract

Health advocacy organizations (HAOs) are influential stakeholders in health policy. Although their advocacy tends to closely correspond with the pharmaceutical industry's marketing aims, the financial relationships between HAOs and the pharmaceutical industry have rarely been analyzed. We used Eli Lilly and Company's grant registry to examine its grant-giving policies. We also examined HAO Web sites to determine their grant-disclosure patterns. Only 25% of HAOs that received Lilly grants acknowledged Lilly's contributions on their Web sites, and only 10% acknowledged Lilly as a grant event sponsor. No HAO disclosed the exact amount of a Lilly grant. As highly trusted organizations, HAOs should disclose all corporate grants, including the purpose and the amount. Absent this disclosure, legislators, regulators, and the public cannot evaluate possible conflicts of interest or biases in HAO advocacy.

Suggested Citation

  • Rothman, S.M. & Raveis, V.H. & Friedman, A. & Rothman, D.J., 2011. "Health advocacy organizations and the pharmaceutical industry: an analysis of disclosure practices," American Journal of Public Health, American Public Health Association, vol. 101(4), pages 602-609.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2010.300027_8
    DOI: 10.2105/AJPH.2010.300027
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    Cited by:

    1. Collette Sosnowy, 2014. "Practicing Patienthood Online: Social Media, Chronic Illness, and Lay Expertise," Societies, MDPI, vol. 4(2), pages 1-14, June.
    2. Cinzia Colombo & Paola Mosconi & Walter Villani & Silvio Garattini, 2012. "Patient Organizations’ Funding from Pharmaceutical Companies: Is Disclosure Clear, Complete and Accessible to the Public? An Italian Survey," PLOS ONE, Public Library of Science, vol. 7(5), pages 1-8, May.
    3. Jesse R. Catlin & Cornelia (Connie) Pechmann, 2016. "An Investigation of Consumer and Doctor Regulatory Beliefs and Regulatory Knowledge about Pharmaceutical Drug Promotions," Journal of the Association for Consumer Research, University of Chicago Press, vol. 1(3), pages 392-410.
    4. Shai Mulinari & Andreas Vilhelmsson & Emily Rickard & Piotr Ozieranski, 2020. "Five years of pharmaceutical industry funding of patient organisations in Sweden: Cross-sectional study of companies, patient organisations and drugs," PLOS ONE, Public Library of Science, vol. 15(6), pages 1-19, June.

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