IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v29y2020i23-24p4633-4644.html
   My bibliography  Save this article

Disruption, worries and autonomy in the everyday lives of adolescents with type 1 diabetes and their family members: A qualitative study of intrafamilial challenges

Author

Listed:
  • Mathilde Overgaard
  • Louise Lundby‐Christensen
  • Dan Grabowski

Abstract

Aim To explore daily life with type 1 diabetes in families with an adolescent with type 1 diabetes. Background Management of adolescent type 1 diabetes is carried out in the context of everyday life, thus involving and affecting the entire family. Type 1 diabetes causes disruption of family life, but the specific experiences and challenges of adolescents with type 1 diabetes, siblings and parents are not well‐explored. Specifically, research is lacking on the siblings’ experience of adolescents with type 1 diabetes. Design A qualitative design using participatory workshops. Methods A sample of 21 families comprising adolescents with type 1 diabetes (aged 8–18) (N = 20), their parents (N = 29) and siblings (N = 10) participated in four workshops exploring everyday life in families with adolescent diabetes from the perspective of all family members. Data were analysed using systematic text condensation. The COREQ checklist was used preparing the manuscript. Results Family life with type 1 diabetes was characterised by three overarching themes: (a) the perpetual challenges and disruptive nature of life with diabetes, (b) different ways of worrying about diabetes and (c) diabetes autonomy and emancipation from parents. All family members’ lives were marked by these aspects, however in different ways and to varying degrees. Conclusions Our findings emphasise that type 1 diabetes is indeed a family illness affecting all family members. The study provides insight into the unique experiences of adolescents with diabetes, their parents and siblings, all of whom encounter diabetes‐related challenges in their daily lives. Relevance to clinical practice The findings call for the inclusion of all family members of adolescents with type 1 diabetes in both research and healthcare practice. Family‐oriented approaches targeting adolescents with diabetes as well as their parents and siblings will enable provision of nursing care that can meet the needs of the entire family.

Suggested Citation

  • Mathilde Overgaard & Louise Lundby‐Christensen & Dan Grabowski, 2020. "Disruption, worries and autonomy in the everyday lives of adolescents with type 1 diabetes and their family members: A qualitative study of intrafamilial challenges," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(23-24), pages 4633-4644, December.
  • Handle: RePEc:wly:jocnur:v:29:y:2020:i:23-24:p:4633-4644
    DOI: 10.1111/jocn.15500
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/jocn.15500
    Download Restriction: no

    File URL: https://libkey.io/10.1111/jocn.15500?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Donna Freeborn & Tina Dyches & Susanne O Roper & Barbara Mandleco, 2013. "Identifying challenges of living with type 1 diabetes: child and youth perspectives," Journal of Clinical Nursing, John Wiley & Sons, vol. 22(13-14), pages 1890-1898, July.
    2. Dan Grabowski & Maria Beatriz Rodriguez Reino & Tue Helms Andersen, 2019. "Mutual Involvement in Families Living with Type 2 Diabetes: Using the Family Toolbox to Address Challenges Related to Knowledge, Communication, Support, Role Confusion, Everyday Practices and Mutual W," Social Sciences, MDPI, vol. 8(9), pages 1-14, September.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Pernille Castensøe‐Seidenfaden & Grete Teilmann & Finn Kensing & Eva Hommel & Birthe Susanne Olsen & Gitte Reventlov Husted, 2017. "Isolated thoughts and feelings and unsolved concerns: adolescents’ and parents’ perspectives on living with type 1 diabetes – a qualitative study using visual storytelling," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(19-20), pages 3018-3030, October.
    2. Lise Bro Johansen & Dan Grabowski, 2021. "“Sometimes You Just Need People around You Who Understand You”: A Qualitative Study of Everyday Life at a Residential Care Unit for Young People with Diabetes," Social Sciences, MDPI, vol. 10(2), pages 1-13, February.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:29:y:2020:i:23-24:p:4633-4644. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.