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Patient‐ and family‐centred care in the intensive care unit: a challenge in the daily practice of healthcare professionals

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  • Margo MC van Mol
  • Trudi GW Boeter
  • Lisbeth Verharen
  • Erwin JO Kompanje
  • Jan Bakker
  • Marjan D Nijkamp

Abstract

Aims and objectives To evaluate the impact of supportive interventions perceived by both the intensive care unit patients’ relatives and the healthcare providers, such as deferred intake interviews for providing information and discussing the emotional impacts, encouragement to keep a diary, and the introduction of weekly psychosocial rounds, on the perceptions of relatives of patients in the intensive care unit. Background Patient‐ and family‐centred care is gaining interest, with a shift from provider‐centric norms to care arranged around patients’ and relatives individual beliefs and needs. This is expected to have a positive influence on the quality of care. Communication is one of the most important factors impacting the perceived quality of care in the intensive care unit from the perspective of patients’ relatives. New interventions have been introduced to help the patients’ relatives to meet their communication needs. Design A time‐trend quantitative design. Methods Two convenience samples of relatives were included (in 2012 and 2013) in four different intensive care units from a large university medical centre in the Netherlands. Results Survey data from 211 relatives (75% net response rate in 2012) and 123 relatives (66% net response rate in 2013) were used for the analysis. The second measurement showed significant improvements regarding informational aspects of care, clarification of roles in participatory caretaking and shared decision‐making. Conclusion The results suggest that the additional support offered to patients’ relatives increased perceived quality of care, particularly with respect to informational needs. However, patient‐ and family‐centred care still requires a change in the mindset of healthcare professionals. This new point of view should overcome perceived barriers and foster a culture of partnership with patients’ relatives in the intensive care unit. Relevance to clinical practice Training in providing psychosocial support for the needs of relatives leads to a stronger perception of patient‐centredness.

Suggested Citation

  • Margo MC van Mol & Trudi GW Boeter & Lisbeth Verharen & Erwin JO Kompanje & Jan Bakker & Marjan D Nijkamp, 2017. "Patient‐ and family‐centred care in the intensive care unit: a challenge in the daily practice of healthcare professionals," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(19-20), pages 3212-3223, October.
    • Handle: RePEc:wly:jocnur:v:26:y:2017:i:19-20:p:3212-3223
    DOI: 10.1111/jocn.13669
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    References listed on IDEAS

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    1. Susan Frampton & Sara Guastello, 2014. "Time to Embrace a New Patient-Centered Care Rallying Cry: “Why Not?”," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 7(3), pages 231-233, September.
    2. Campbell, S. M. & Roland, M. O. & Buetow, S. A., 2000. "Defining quality of care," Social Science & Medicine, Elsevier, vol. 51(11), pages 1611-1625, December.
    3. Bridget McConnell & Tracey Moroney, 2015. "Involving relatives in ICU patient care: critical care nursing challenges," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(7-8), pages 991-998, April.
    4. Abbas Al Mutair & Virginia Plummer & Anthony Paul O'Brien & Rosemary Clerehan, 2014. "Attitudes of healthcare providers towards family involvement and presence in adult critical care units in Saudi Arabia: a quantitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 23(5-6), pages 744-755, March.
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