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The unmet supportive care needs of long‐term head and neck cancer caregivers in the extended survivorship period

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  • Myles Balfe
  • Katie O'Brien
  • Aileen Timmons
  • Phyllis Butow
  • Eleanor O' Sullivan
  • Rachael Gooberman‐Hill
  • Linda Sharp

Abstract

Aims and objectives To examine the unmet supportive care needs of long‐term head and neck cancer caregivers, and the factors associated with those needs. Background Research on the unmet needs of head and neck cancer caregivers is lacking, particularly in the long‐term survivorship period. Design Survey of 197 caregivers. Methods The study collected information on caregivers’ demographic characteristics and their unmet supportive care needs (as measured by the Partners and Caregivers Supportive Care Needs Survey). An overall score of unmet need was generated, as were scores for four separate domains of unmet needs (emotional, health, information and work/social). Results Seventy six percentage of respondents were female, and 88% reported being married or living with a partner. Mean age was 57 years. Most caregivers had low levels of unmet needs. Managing fears about the cancer recurring was the most commonly reported individual need, described by slightly more than one in five respondents. The highest levels of need were located in the emotional and the health services domains. Loneliness and financial stress were consistently and significantly associated with high levels of unmet need in the multivariable analysis. Conclusions Most head and neck cancer caregivers appear to have low levels of unmet need in the extended survivorship period. The greatest levels of unmet need that are experienced occur in relation to emotional and health service domains. Needs diminish over time. Relevance to clinical practice Health professionals should be aware that a minority of long‐term head and neck caregivers continue to experience strong fears of cancer recurrence. To reduce unmet needs across multiple domains, health professionals should seek to reduce caregivers’ feelings of loneliness, and to assist caregivers to reduce the financial burdens that they experience as a result of long‐term caring.

Suggested Citation

  • Myles Balfe & Katie O'Brien & Aileen Timmons & Phyllis Butow & Eleanor O' Sullivan & Rachael Gooberman‐Hill & Linda Sharp, 2016. "The unmet supportive care needs of long‐term head and neck cancer caregivers in the extended survivorship period," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(11-12), pages 1576-1586, June.
  • Handle: RePEc:wly:jocnur:v:25:y:2016:i:11-12:p:1576-1586
    DOI: 10.1111/jocn.13140
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    References listed on IDEAS

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    1. Sandra Ottosson & Göran Laurell & Cecilia Olsson, 2013. "The experience of food, eating and meals following radiotherapy for head and neck cancer: a qualitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 22(7-8), pages 1034-1043, April.
    2. Kathryn O’Brien & Brenda Roe & Christopher Low & Lorraine Deyn & Simon N Rogers, 2012. "An exploration of the perceived changes in intimacy of patients’ relationships following head and neck cancer," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(17‐18), pages 2499-2508, September.
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