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An exploratory study of the follow‐up care needs of patients treated for colorectal cancer

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Listed:
  • Kinta Beaver
  • Saima Latif
  • Susan Williamson
  • Debbie Procter
  • Janet Sheridan
  • Jonathan Heath
  • Shabbir Susnerwala
  • Karen Luker

Abstract

Aims and objectives. To explore patient perceptions of their experiences of follow‐up care after treatment for colorectal cancer. Background. The optimal follow‐up strategy for colorectal cancer is not known, and although patients are seen in traditional outpatient follow‐up clinics, this system may not meet psycho‐social and information needs. Design. An exploratory qualitative study. Method. In‐depth interviews were conducted with 27 patients who had completed treatment for colorectal cancer. The data were analysed using thematic analysis. Results. One dominant theme emerged from the data with several sub‐themes. The dominant theme was ‘knowing what to expect’ after bowel surgery. The subthemes related to ‘living with altered bowel function’, the ways patients gathered information about their condition through ‘trial and error’ and ‘information and support from specialist nurses’. Patients who did not have a stoma were particularly vulnerable and expressed a need for more information on knowing what to expect after surgery. The role of the colorectal nurse specialist was vital in providing information and support; in particular, nurse‐led clinics provided continuity of care and information that was tailored to individual need. Conclusions. Traditional hospital follow‐up does not always address patients’ psycho‐social and information needs. Nurse‐led services were commented on favourably in terms of providing information that was tailored to individual need as well as being responsive to urgent patient concerns; future innovative strategies for providing follow‐up care for patients with colorectal cancer should draw on the specialist knowledge and skills of these nurses. Relevance to clinical practice. Nurse‐led clinics and/or telephone follow‐up by specialist nurses may be effective models of care for this particular patient group, providing appropriate access for meeting clinical, psycho‐social and information needs.

Suggested Citation

  • Kinta Beaver & Saima Latif & Susan Williamson & Debbie Procter & Janet Sheridan & Jonathan Heath & Shabbir Susnerwala & Karen Luker, 2010. "An exploratory study of the follow‐up care needs of patients treated for colorectal cancer," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(23‐24), pages 3291-3300, December.
  • Handle: RePEc:wly:jocnur:v:19:y:2010:i:23-24:p:3291-3300
    DOI: 10.1111/j.1365-2702.2010.03407.x
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    References listed on IDEAS

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    1. Hack, Thomas F. & Degner, Lesley F. & Dyck, Dennis G., 1994. "Relationship between preferences for decisional control and illness information among women with breast cancer: A quantitative and qualitative analysis," Social Science & Medicine, Elsevier, vol. 39(2), pages 279-289, July.
    2. Manderson, Lenore, 2005. "Boundary breaches: the body, sex and sexuality after stoma surgery," Social Science & Medicine, Elsevier, vol. 61(2), pages 405-415, July.
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    1. Thora G Thomsen & Lisbeth Soelver & Bibi Hølge‐Hazelton, 2017. "The influence of contextual factors on patient involvement during follow‐up consultations after colorectal cancer surgery: a case study," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(21-22), pages 3688-3698, November.
    2. Sha‐Li Wen & Juan Li & An‐Ni Wang & Meng‐Meng Lv & Hui‐Yuan Li & Yan‐Fang Lu & Jing‐Ping Zhang, 2019. "Effects of transtheoretical model‐based intervention on the self‐management of patients with an ostomy: A randomised controlled trial," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(9-10), pages 1936-1951, May.
    3. Ann‐Caroline Johansson & Eva Brink & Christina Cliffordson & Malin Axelsson, 2018. "The function of fatigue and illness perceptions as mediators between self‐efficacy and health‐related quality of life during the first year after surgery in persons treated for colorectal cancer," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1537-1548, April.
    4. Xi Zhang & Rui Gao & Jin Ling Lin & Ning Chen & Qin Lin & Gui Fang Huang & Long Wang & Xiao Huan Chen & Fang Qin Xue & Hong Li, 2020. "Effects of hospital‐family holistic care model on the health outcome of patients with permanent enterostomy based on the theory of ‘Timing It Right’," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(13-14), pages 2196-2208, July.
    5. Marianne Krogsgaard & Thordis Thomsen & Anders Vinther & Ismail Gögenur & Gudrun Kaldan & Anne Kjærgaard Danielsen, 2017. "Living with a parastomal bulge ‐ patients’ experiences of symptoms," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 5072-5081, December.
    6. Maria Reinwalds & Andrea Blixter & Eva Carlsson, 2018. "Living with a resected rectum after rectal cancer surgery—Struggling not to let bowel function control life," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(3-4), pages 623-634, February.
    7. Margaret Landers & Geraldine McCarthy & Vicki Livingstone & Eileen Savage, 2014. "Patients’ bowel symptom experiences and self‐care strategies following sphincter‐saving surgery for rectal cancer," Journal of Clinical Nursing, John Wiley & Sons, vol. 23(15-16), pages 2343-2354, August.
    8. Samantha Jakimowicz & Christine Stirling & Maree Duddle, 2015. "An investigation of factors that impact patients’ subjective experience of nurse‐led clinics: a qualitative systematic review," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(1-2), pages 19-33, January.
    9. Jenny Jakobsson & Ewa Idvall & Christine Kumlien, 2017. "The lived experience of recovery during the first 6 months after colorectal cancer surgery," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 4498-4505, December.

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