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Relationship between preferences for decisional control and illness information among women with breast cancer: A quantitative and qualitative analysis

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  • Hack, Thomas F.
  • Degner, Lesley F.
  • Dyck, Dennis G.

Abstract

This study examined relationships between cancer patients' preference for involvement in making treatment decisions and preferences for information about diagnosis, treatment, side effects, and prognonsis. Participant were 35 women with stage Iand II breast cancer recruited from two medical oncology and radiation oncology clinics. Following adminstration of card sort measures of preference for involvement in treatment decision making and information needs, a semi-structured interviews was conducted to provide patients with an opportunity to elaborate on their role preferences and health care experiences. Results showed that patients who desired an active role in treatment decision making also desired detailed information. This relationship was not as clear for passive patients. Relative to passive patients, active patients desired significantly more datailed explanations of their diagnosis, treatment alternatives, and treatment procedures. Active also preferred that their physicians use the words 'cancer' or 'malignancy' when referring to their illness while passive patients preferred that their phusicians use a euphemism. Further research is needed to critically detail the advantages and disadvantages of the active and passive roles and their impact on disease progression and psyhcological well-being.

Suggested Citation

  • Hack, Thomas F. & Degner, Lesley F. & Dyck, Dennis G., 1994. "Relationship between preferences for decisional control and illness information among women with breast cancer: A quantitative and qualitative analysis," Social Science & Medicine, Elsevier, vol. 39(2), pages 279-289, July.
    • Handle: RePEc:eee:socmed:v:39:y:1994:i:2:p:279-289
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    Cited by:

    1. Budych, Karolina & Helms, Thomas M. & Schultz, Carsten, 2012. "How do patients with rare diseases experience the medical encounter? Exploring role behavior and its impact on patient–physician interaction," Health Policy, Elsevier, vol. 105(2), pages 154-164.
    2. Kinta Beaver & Saima Latif & Susan Williamson & Debbie Procter & Janet Sheridan & Jonathan Heath & Shabbir Susnerwala & Karen Luker, 2010. "An exploratory study of the follow‐up care needs of patients treated for colorectal cancer," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(23‐24), pages 3291-3300, December.
    3. Gaston, Christine M. & Mitchell, Geoffrey, 2005. "Information giving and decision-making in patients with advanced cancer: A systematic review," Social Science & Medicine, Elsevier, vol. 61(10), pages 2252-2264, November.
    4. O' Donnell, Máire & Monz, Brigitta & Hunskaar, Steinar, 2007. "General preferences for involvement in treatment decision making among European women with urinary incontinence," Social Science & Medicine, Elsevier, vol. 64(9), pages 1914-1924, May.
    5. Jean Parboosingh & Sylvie Stachenko & Suzanne Inhaber, 1997. "A Model of Consumer Participation: The Canadian Breast Cancer Initiative," Canadian Public Policy, University of Toronto Press, vol. 23(s1), pages 177-186, Spring.
    6. Suzanne K. Steginga & Stefano Occhipinti, 2004. "The Application of the Heuristic-Systematic Processing Model to Treatment Decision Making about Prostate Cancer," Medical Decision Making, , vol. 24(6), pages 573-583, November.

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