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Perceived Barriers and Potential Strategies to Improve Self-Management Among Adults with Type 2 Diabetes: A Community-Engaged Research Approach

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  • Tanjala S. Purnell

    (Johns Hopkins Bloomberg School of Public Health
    Johns Hopkins School of Medicine
    Center for Health Services and Outcomes Research, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health)

  • Thomas J. Lynch

    (Armstrong Institute for Patient Safety and Quality, Johns Hopkins School of Medicine)

  • Lee Bone

    (Center for Health Services and Outcomes Research, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health
    Johns Hopkins Bloomberg School of Public Health
    Johns Hopkins Institute for Clinical and Translational Research, Johns Hopkins School of Medicine)

  • Jodi B. Segal

    (Center for Health Services and Outcomes Research, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health
    Johns Hopkins School of Medicine)

  • Crystal Evans

    (Johns Hopkins Institute for Clinical and Translational Research, Johns Hopkins School of Medicine)

  • Daniel R. Longo

    (Virginia Commonwealth University)

  • John F. P. Bridges

    (Center for Health Services and Outcomes Research, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health
    Johns Hopkins Bloomberg School of Public Health)

Abstract

Objective Type 2 diabetes (T2D) is a leading cause of morbidity and mortality that disproportionately affects adults living in urban areas in the USA. Our goal was to actively engage community members in research to identify strategies to improve T2D self-management in an urban community in Baltimore, MD. Methods We partnered with the Johns Hopkins Community Research Advisory Council to establish our stakeholder advisory board—the Diabetes Action Board (DAB). In response to input from DAB members regarding the best approaches for conducting community-centered T2D research, we conducted three 90-min focus groups of local adults living with T2D to identify ways to improve self-management. DAB members were involved in each stage of the research, including development of the protocol and materials, participant recruitment, and interpretation and dissemination of findings. Results In total, 24 adults with self-reported T2D (75 % participation rate; 79 % female) residing in the local area participated in focus groups. Participants reported that barriers within their daily home and work environments, inadequate neighborhood resources, and suboptimal healthcare quality hindered their self-management. Reported strategies that may help to improve self-management included social support from family members, providers, and community members; improved access to healthy food; and wide availability of free or low-cost T2D educational materials and classes within the local area. Conclusion Our study demonstrates a successful mechanism for engaging community members in the design, implementation, and dissemination of T2D research. This research approach was beneficial for building a sustainable partnership to support future work in the local community.

Suggested Citation

  • Tanjala S. Purnell & Thomas J. Lynch & Lee Bone & Jodi B. Segal & Crystal Evans & Daniel R. Longo & John F. P. Bridges, 2016. "Perceived Barriers and Potential Strategies to Improve Self-Management Among Adults with Type 2 Diabetes: A Community-Engaged Research Approach," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 9(4), pages 349-358, August.
    • Handle: RePEc:spr:patien:v:9:y:2016:i:4:d:10.1007_s40271-016-0162-3
    DOI: 10.1007/s40271-016-0162-3
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    References listed on IDEAS

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    1. Bynum, Julie P. W. & Fisher, Elliot S. & Yunjie, Song & Skinner, Jonathan & Chandra, Amitabh, 2010. "Measuring Racial Disparities in the Quality of Ambulatory Diabetes Care," Scholarly Articles 8057975, Harvard Kennedy School of Government.
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    Cited by:

    1. van der Heide, Iris & Snoeijs, Sanne & Quattrini, Sabrina & Struckmann, Verena & Hujala, Anneli & Schellevis, François & Rijken, Mieke, 2018. "Patient-centeredness of integrated care programs for people with multimorbidity. Results from the European ICARE4EU project," Health Policy, Elsevier, vol. 122(1), pages 36-43.
    2. Ellen M. Janssen & Jodi B. Segal & John F. P. Bridges, 2016. "A Framework for Instrument Development of a Choice Experiment: An Application to Type 2 Diabetes," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 9(5), pages 465-479, October.

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