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Patient Centeredness in Hepatitis C Direct-Acting Antiviral Treatment Delivery to People Who Inject Drugs: A Scoping Review

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Listed:
  • Moaz Abdelwadoud

    (University of Maryland School of Pharmacy)

  • T. Joseph Mattingly

    (University of Maryland School of Pharmacy)

  • Hemanuel Arroyo Seguí

    (University of Maryland School of Pharmacy)

  • Emily F. Gorman

    (University of Maryland)

  • Eleanor M. Perfetto

    (University of Maryland School of Pharmacy)

Abstract

Background and Objective Patient-centered care (PCC) is crucial for value-based care. We aimed to assess PCC dimensions addressed in hepatitis C virus direct-acting antiviral treatment delivery to people who inject drugs. Methods We conducted a scoping review to identify the studies that described hepatitis C virus treatment delivery to people who inject drugs in the direct-acting antiviral treatment era. We analyzed the included studies against eight PCC dimensions: (1) access to care; (2) coordination and integration of care; (3) continuity and translation; (4) physical comfort; (5) information, education, and communication; (6) emotional support; (7) involvement of family and friends; and (8) respect for individual patient preferences, perceived needs, and values. Additionally, we assessed the use of patient-centered terminology and the recognition of PCC importance and its relevance to treatment outcomes. Results None of the identified 36 studies addressed all PCC dimensions (highest seven, lowest two). Our findings revealed that PCC dimensions are prioritized differently and addressed using different approaches and strategies. Studies that used PCC terminology referred to personalized activities, which does not imply comprehensive PCC. About one-third of the studies acknowledged the importance of patient centeredness and two-thirds recognized its relevance to treatment outcomes. Conclusions Our findings suggest more engagement of people who inject drugs and comprehensive involvement of their families and friends in hepatitis C virus treatment journey, decisions, and outcomes. The recognition of PCC importance and its relevance to treatment outcomes in the analyzed studies emphasizes the need for more patient-centered hepatitis C virus treatment for people who inject drugs.

Suggested Citation

  • Moaz Abdelwadoud & T. Joseph Mattingly & Hemanuel Arroyo Seguí & Emily F. Gorman & Eleanor M. Perfetto, 2021. "Patient Centeredness in Hepatitis C Direct-Acting Antiviral Treatment Delivery to People Who Inject Drugs: A Scoping Review," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 14(5), pages 471-484, September.
    • Handle: RePEc:spr:patien:v:14:y:2021:i:5:d:10.1007_s40271-020-00489-6
    DOI: 10.1007/s40271-020-00489-6
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    References listed on IDEAS

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    1. T. Joseph Mattingly & Julia F. Slejko & Eleanor M. Perfetto & Shyamasundaran Kottilil & C. Daniel Mullins, 2019. "What Matters Most for Treatment Decisions in Hepatitis C: Effectiveness, Costs, and Altruism," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 12(6), pages 631-638, December.
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