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Use of Patient Preference Studies in HTA Decision Making: A NICE Perspective

Author

Listed:
  • Jacoline C. Bouvy

    (National Institute for Health and Care Excellence)

  • Luke Cowie

    (National Institute for Health and Care Excellence)

  • Rosemary Lovett

    (National Institute for Health and Care Excellence)

  • Deborah Morrison

    (National Institute for Health and Care Excellence)

  • Heidi Livingstone

    (National Institute for Health and Care Excellence)

  • Nick Crabb

    (National Institute for Health and Care Excellence
    National Institute for Health and Care Excellence)

Abstract

Patient preference studies could provide valuable insights to a National Institute for Health and Care Excellence committee into the preferences patients have for different treatment options, especially if the study sample is representative of the broader patient population. We identify three main uses of patient preference studies along a technology’s pathway from drug development to clinical use: in early clinical development to guide the selection of appropriate endpoints, to inform benefit-risk assessments carried out by regulators and to inform reimbursement decisions made by health technology assessment bodies. In the context of the National Institute for Health and Care Excellence’s methods and processes, we do not see a role for quantitative patient preference data to be directly incorporated into health economic modelling. Rather, we see a role for patient preference studies to be submitted alongside other types of evidence. Examples where patient preference studies might have added value in health technology assessments include cases where two distinctly different treatment options are being compared, when patients have to decide between multiple treatment options, when technologies have important non-health benefits or when a treatment is indicated for a heterogenous population.

Suggested Citation

  • Jacoline C. Bouvy & Luke Cowie & Rosemary Lovett & Deborah Morrison & Heidi Livingstone & Nick Crabb, 2020. "Use of Patient Preference Studies in HTA Decision Making: A NICE Perspective," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 13(2), pages 145-149, April.
  • Handle: RePEc:spr:patien:v:13:y:2020:i:2:d:10.1007_s40271-019-00408-4
    DOI: 10.1007/s40271-019-00408-4
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    Cited by:

    1. David J. Mott & Laura Ternent & Luke Vale, 2023. "Do preferences differ based on respondent experience of a health issue and its treatment? A case study using a public health intervention," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 24(3), pages 413-423, April.
    2. Sophi Tatlock & Kate Sully & Anjali Batish & Chelsea Finbow & William Neill & Carol Lines & Roisin Brennan & Nicholas Adlard & Tamara Backhouse, 2023. "Individual Differences in the Patient Experience of Relapsing Multiple Sclerosis (RMS): A Multi-Country Qualitative Exploration of Drivers of Treatment Preferences Among People Living with RMS," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 16(4), pages 345-357, July.
    3. Kevin Marsh & Nicolas Krucien, 2022. "Evaluating the Consistency of Patient Preference Estimates: Systematic Variation in Survival—Adverse Event Trade-Offs in Patients with Cancer or Cardiovascular Disease," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 15(1), pages 69-75, January.
    4. Shan Jiang & Ru Ren & Yuanyuan Gu & Varinder Jeet & Ping Liu & Shunping Li, 2023. "Patient Preferences in Targeted Pharmacotherapy for Cancers: A Systematic Review of Discrete Choice Experiments," PharmacoEconomics, Springer, vol. 41(1), pages 43-57, January.

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