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Healthcare Experience and their Relationship with Demographic, Disease and Healthcare-Related Variables: A Cross-Sectional Survey of Patients with Chronic Diseases Using the IEXPAC Scale

Author

Listed:
  • Domingo Orozco-Beltrán

    (Miguel Hernandez University)

  • Javier Toro

    (A Coruña University Hospital)

  • María J. Galindo

    (Clinic University Hospital)

  • Ignacio Marín-Jiménez

    (Gregorio Marañón University)

  • Francesc Casellas

    (Hospital Universitari Vall d’Hebron)

  • María J. Fuster-RuizdeApodaca

    (SEISIDA (Spanish AIDS Multidisciplinary Society))

  • María L. García-Vivar

    (Basurto University Hospital)

  • Antonio Hormigo-Pozo

    (San Andres-Torcal Health Care Center)

  • Mercedes Guilabert

    (Miguel Hernández University)

  • Nuria Sánchez-Vega

    (Merck Sharp and Dohme Spain)

  • Gonzalo Fernández

    (Merck Sharp and Dohme Spain)

  • Luis Cea-Calvo

    (Merck Sharp and Dohme Spain)

Abstract

Background Patient experience is acknowledged as a principal aspect of quality healthcare delivery, and it has implications with regard to outcomes. Objectives Our objective was to evaluate the healthcare experience of patients with chronic diseases to identify patient-perceived healthcare gaps and to assess the influence of demographic and healthcare-related variables on patient experiences. Methods A cross-sectional survey was delivered to adult patients with chronic diseases: diabetes mellitus (DM), human immunodeficiency virus (HIV) infection, inflammatory bowel disease (IBD) or rheumatic diseases. Patient experiences were assessed with the Instrument for Evaluation of the Experience of Chronic Patients (IEXPAC) questionnaire, with possible scores ranging from 0 (worst) to 10 (best experience). Results Of the 2474 patients handed the survey, 1618 returned it (response rate 65.4%). Patients identified gaps in healthcare related mainly to access to reliable information and services, interaction with other patients and continuity of healthcare after hospital discharge. The mean ± standard deviation (SD) IEXPAC score was 6.0 ± 1.9 and was higher for patients with HIV (6.6 ± 1.7) than for those with rheumatic disease (5.5 ± 2.0), IBD (5.9 ± 2.0) or DM (5.9 ± 1.9) (p

Suggested Citation

  • Domingo Orozco-Beltrán & Javier Toro & María J. Galindo & Ignacio Marín-Jiménez & Francesc Casellas & María J. Fuster-RuizdeApodaca & María L. García-Vivar & Antonio Hormigo-Pozo & Mercedes Guilabert , 2019. "Healthcare Experience and their Relationship with Demographic, Disease and Healthcare-Related Variables: A Cross-Sectional Survey of Patients with Chronic Diseases Using the IEXPAC Scale," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 12(3), pages 307-317, June.
    • Handle: RePEc:spr:patien:v:12:y:2019:i:3:d:10.1007_s40271-018-0345-1
    DOI: 10.1007/s40271-018-0345-1
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    Cited by:

    1. Concepción Soto-Vidal & Soraya Pacheco-da-Costa & Victoria Calvo-Fuente & Sara Fernández-Guinea & Carlos González-Alted & Tomás Gallego-Izquierdo, 2020. "Validation of the Spanish Version of Newcastle Stroke-Specific Quality of Life Measure (NEWSQOL)," IJERPH, MDPI, vol. 17(12), pages 1-9, June.

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