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Putting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments

Author

Listed:
  • Karen M. Facey

    (Usher Institute of Population Health Sciences and Informatics)

  • Nicola Bedlington

    (European Patients’ Forum)

  • Sarah Berglas

    (Canadian Agency for Drugs and Technologies in Health (CADTH))

  • Neil Bertelsen
  • Ann N. V. Single
  • Victoria Thomas

    (National Institute for Health and Care Excellence)

Abstract

Health technology assessments (HTAs) are meant to inform health policy by taking account of all the potential impacts of using a health technology. In the 1990s, HTAs included rigorous research to produce patient-based evidence, and some supported participation of patient representatives to help focus HTA research and determine value. In the 2000s, HTAs became more closely linked to reimbursement decisions, focusing on clinical and cost effectiveness. Patient involvement should be tailored to the specific needs of each HTA. As the timeframe for HTAs has reduced, research to produce patient-based evidence has been replaced by input from patient groups. This places a burden on individuals and organizations that needs to be critically reviewed. Therefore, it is imperative that we clarify when patient involvement is likely to add value and support patients to provide their unique knowledge in the most optimal way to influence HTA decision making. To reduce the burden on patient groups, more must be done to encourage research to produce patient-based evidence early in technology development. Like clinical research, a programme of research should be carefully planned, with appropriate methodological rigor for each study, and all research should be published. For this, the development of quality standards for research to produce patient-based evidence may be needed. Patient involvement has inherent value. It should be focused, systematic and transparent, and evolve according to the experiences of all stakeholders. All countries or collaboratives that undertake HTA should consider how they can elicit the needs, preferences and experiences of patients to support creation of patient-centered healthcare policy.

Suggested Citation

  • Karen M. Facey & Nicola Bedlington & Sarah Berglas & Neil Bertelsen & Ann N. V. Single & Victoria Thomas, 2018. "Putting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 11(6), pages 581-589, December.
  • Handle: RePEc:spr:patien:v:11:y:2018:i:6:d:10.1007_s40271-018-0325-5
    DOI: 10.1007/s40271-018-0325-5
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    References listed on IDEAS

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    1. D. R. Cox & R. Fitzpatrick & A. E. Fletcher & S. M. Gore & D. J. Spiegelhalter & D. R. Jones, 1992. "Quality‐Of‐Life Assessment: Can We Keep it Simple?," Journal of the Royal Statistical Society Series A, Royal Statistical Society, vol. 155(3), pages 353-375, May.
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    Cited by:

    1. Nicole Gusset, 2022. "Importance of Patient Involvement in the Value Assessment Process: On the Way Towards Personalised Treatments," PharmacoEconomics, Springer, vol. 40(1), pages 7-10, April.
    2. Sarri, Grammati & Freitag, Andreas & Szegvari, Boglarka & Mountian, Irina & Brixner, Diana & Bertelsen, Neil & Kaló, Zoltán & Upadhyaya, Sheela, 2021. "The Role of Patient Experience in the Value Assessment of Complex Technologies – Do HTA Bodies Need to Reconsider How Value is Assessed?," Health Policy, Elsevier, vol. 125(5), pages 593-601.

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