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Understanding Treatment Burden for Children Treated for Growth Hormone Deficiency

Author

Listed:
  • Meryl Brod

    (The Brod Group)

  • Lise Højbjerre

    (Novo Nordisk)

  • Suzanne Lessard Alolga

    (The Brod Group)

  • Jane F. Beck

    (The Brod Group)

  • Lars Wilkinson

    (Novo Nordisk)

  • Michael Højby Rasmussen

    (Novo Nordisk)

Abstract

Objective Growth hormone deficiency (GHD) treatment for children requires growth hormone injections, typically administered daily until the child reaches adult height. Child GHD treatment burden is not well understood and no disease-specific measures exist to assess this burden. The purpose of the study was to explore GHD treatment burden for children and their parents by conducting concept elicitation interviews supporting a theoretical model of the impact of GHD treatment. Methods Four focus groups (in Germany) and 52 telephone interviews (in the UK and USA) were conducted with children/adolescents with GHD aged 8 to

Suggested Citation

  • Meryl Brod & Lise Højbjerre & Suzanne Lessard Alolga & Jane F. Beck & Lars Wilkinson & Michael Højby Rasmussen, 2017. "Understanding Treatment Burden for Children Treated for Growth Hormone Deficiency," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 10(5), pages 653-666, October.
    • Handle: RePEc:spr:patien:v:10:y:2017:i:5:d:10.1007_s40271-017-0237-9
    DOI: 10.1007/s40271-017-0237-9
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    Cited by:

    1. Lea Lackner & Julia Quitmann & Kaja Kristensen & Stefanie Witt, 2023. "Health-Related Quality of Life, Stress, Caregiving Burden and Special Needs of Parents Caring for a Short-Statured Child—Review and Recommendations for Future Research," IJERPH, MDPI, vol. 20(16), pages 1-19, August.

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