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Acceptability of less than perfect health states in rheumatoid arthritis: the patients’ perspective

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Listed:
  • Márta Péntek
  • Bernadette Rojkovich
  • László Czirják
  • Pál Géher
  • Péter Keszthelyi
  • Attila Kovács
  • László Kovács
  • Zita Szabó
  • Zoltán Szekanecz
  • László Tamási
  • Ágnes Tóth
  • Ilona Ujfalussy
  • Noémi Hevér
  • Bálint Strbák
  • Petra Baji
  • Valentin Brodszky
  • László Gulácsi

Abstract

Some health problems are considered by many individuals as a ‘normal’ part of ageing. Our aim was to investigate whether patients with rheumatoid arthritis (RA) consider different types and levels of health losses as acceptable beyond a certain age. A multicenter cross-sectional survey was performed involving RA patients at the initiation of the first biological therapy. The EQ-5D and the Health Assessment Questionnaire Disability Index (HAQ-DI) questionnaires were used to describe domain-specific health states. Patients were asked to indicate for each domain from what age and onward (between ages 30 and 80 years in 10 year intervals) they considered moderate and severe problems acceptable or alternatively never acceptable. Seventy-seven RA patients (females 86 %, mean age 50.3, disease duration 9.1 years) completed the questionnaire. Disease activity (DAS28), EQ-5D and HAQ-DI scores were mean 6.00 (SD 0.85), 0.35 (SD 0.36), 1.48 (SD 0.66), respectively. The majority of the patients considered age 70 and beyond as acceptable to have some health problems (EQ-5D: self-care 42 %, pain/discomfort 34 %, mobility 33 %, usual activities 33 %, anxiety/depression 27 %), whilst at ages 30 and 40 as not acceptable. Severe health problems were mostly (57–69 %) considered never acceptable, except the ‘Usual activities’ domain (acceptable from age 80 by 50.6 %). The great majority of the patients (77–96 %) were younger than what they indicated as the acceptability age limit. Similar results were found for the HAQ-DI. This small experimental study suggests that RA patients consider some health problems acceptable. This acceptability is age related and varies by health areas. Further larger studies are needed to explore explanatory variables and to compare with other diseases. Owing to the impact acceptability might have on RA patients’ self-evaluation of current health state and decision-making, the topic deserves methodological improvement and further investigation. Copyright Springer-Verlag Berlin Heidelberg 2014

Suggested Citation

  • Márta Péntek & Bernadette Rojkovich & László Czirják & Pál Géher & Péter Keszthelyi & Attila Kovács & László Kovács & Zita Szabó & Zoltán Szekanecz & László Tamási & Ágnes Tóth & Ilona Ujfalussy & Noé, 2014. "Acceptability of less than perfect health states in rheumatoid arthritis: the patients’ perspective," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 15(1), pages 73-82, May.
    • Handle: RePEc:spr:eujhec:v:15:y:2014:i:1:p:73-82
    DOI: 10.1007/s10198-014-0596-2
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    References listed on IDEAS

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    Cited by:

    1. Márta Péntek, 2019. "Patient-reported outcomes: opportunities and challenges in Central Europe," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(1), pages 1-3, June.
    2. Zoltán Hermann & Márta Péntek & László Gulácsi & Irén Anna Kopcsóné Németh & Zsombor Zrubka, 2022. "Measuring the acceptability of EQ-5D-3L health states for different ages: a new adaptive survey methodology," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 23(7), pages 1243-1255, September.
    3. Arthur E. Attema & Werner B. F. Brouwer & Jose Luis Pinto‐Prades, 2022. "Reference‐dependent age weighting of quality‐adjusted life years," Health Economics, John Wiley & Sons, Ltd., vol. 31(12), pages 2515-2536, December.
    4. Zsombor Zrubka & Zoltán Hermann & László Gulácsi & Valentin Brodszky & Fanni Rencz & Márta Péntek, 2019. "Determinants of the acceptability of health problems in different ages: exploring a new application of the EQ VAS," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(1), pages 31-41, June.
    5. Wouters, S. & van Exel, N.J.A. & Rohde, K.I.M. & Vromen, J.J. & Brouwer, W.B.F., 2017. "Acceptable health and priority weighting: Discussing a reference-level approach using sufficientarian reasoning," Social Science & Medicine, Elsevier, vol. 181(C), pages 158-167.

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    More about this item

    Keywords

    Health status; Rheumatoid arthritis; Acceptability; EQ-5D; HAQ-DI; I19;
    All these keywords.

    JEL classification:

    • I19 - Health, Education, and Welfare - - Health - - - Other

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