IDEAS home Printed from https://ideas.repec.org/a/sae/sagope/v3y2013i3p2158244013505293.html
   My bibliography  Save this article

Patients’ Perception of Patient–Provider Communication in Fertility Preservation Decision Making Among Young Women With Cancer

Author

Listed:
  • Aakrati Mathur
  • E. Robert Orellana
  • Amy Frohnmayer
  • Pauline Jivanjee
  • Lillian Nail
  • Brandon Hayes-Lattin
  • Rebecca G. Block

Abstract

Fertility preservation (FP) for patients with cancer is an emerging field. With the advancement of technology, patients may face a complex decision-making process about whether to preserve fertility. The purpose of this article is to explore how young women with cancer perceive patient–provider communication in FP decision making. In this study, 25 women between the ages of 18 and 39 were interviewed retrospectively. They were interviewed one time to learn about their decision-making process related to FP. Results of this analysis indicate that patients seek support and involvement from providers throughout the process of decision making. They prefer providers to be directive when referring to the fertility clinic. Later in the process, they expect a supportive style of communication from providers. Patient-accessible language, supportive and reassuring styles of communication, and an existing relationship with providers may enhance well-being of the patients.

Suggested Citation

  • Aakrati Mathur & E. Robert Orellana & Amy Frohnmayer & Pauline Jivanjee & Lillian Nail & Brandon Hayes-Lattin & Rebecca G. Block, 2013. "Patients’ Perception of Patient–Provider Communication in Fertility Preservation Decision Making Among Young Women With Cancer," SAGE Open, , vol. 3(3), pages 21582440135, September.
    • Handle: RePEc:sae:sagope:v:3:y:2013:i:3:p:2158244013505293
    DOI: 10.1177/2158244013505293
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/2158244013505293
    Download Restriction: no
    File URL: https://libkey.io/10.1177/2158244013505293?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Blanchard, Christina G. & Labrecque, Mark S. & Ruckdeschel, John C. & Blanchard, Edward B., 1988. "Information and decision-making preferences of hospitalized adult cancer patients," Social Science & Medicine, Elsevier, vol. 27(11), pages 1139-1145, January.
    2. Quinn, Gwendolyn P. & Vadaparampil, Susan T. & Bell-Ellison, Bethany A. & Gwede, Clement K. & Albrecht, Terrance L., 2008. "Patient-physician communication barriers regarding fertility preservation among newly diagnosed cancer patients," Social Science & Medicine, Elsevier, vol. 66(3), pages 784-789, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Jennifer Chamberlain-Salaun & Kim Usher & Jane Mills, 2020. "Outsiders in the Experts’ World: A Grounded Theory Study of Consumers and the Social World of Health Care," SAGE Open, , vol. 10(1), pages 21582440209, January.
    2. Inhorn, Marcia C. & Birenbaum-Carmeli, Daphna & Patrizio, Pasquale, 2017. "Medical egg freezing and cancer patients’ hopes: Fertility preservation at the intersection of life and death," Social Science & Medicine, Elsevier, vol. 195(C), pages 25-33.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Schaepe, Karen Sue, 2011. "Bad news and first impressions: Patient and family caregiver accounts of learning the cancer diagnosis," Social Science & Medicine, Elsevier, vol. 73(6), pages 912-921, September.
    2. Michael Saheb Kashaf & Elizabeth McGill, 2015. "Does Shared Decision Making in Cancer Treatment Improve Quality of Life? A Systematic Literature Review," Medical Decision Making, , vol. 35(8), pages 1037-1048, November.
    3. Lim, Jennifer N.W. & Edlin, Richard, 2009. "Preferences of older patients and choice of treatment location in the UK: A binary choice experiment," Health Policy, Elsevier, vol. 91(3), pages 252-257, August.
    4. Gaston, Christine M. & Mitchell, Geoffrey, 2005. "Information giving and decision-making in patients with advanced cancer: A systematic review," Social Science & Medicine, Elsevier, vol. 61(10), pages 2252-2264, November.
    5. Inhorn, Marcia C. & Birenbaum-Carmeli, Daphna & Patrizio, Pasquale, 2017. "Medical egg freezing and cancer patients’ hopes: Fertility preservation at the intersection of life and death," Social Science & Medicine, Elsevier, vol. 195(C), pages 25-33.
    6. Moumjid, Nora & Charles, Cathy & Morelle, Magali & Gafni, Amiram & Brémond, Alain & Farsi, Fadila & Whelan, Tim & Carrère, Marie-Odile, 2009. "The statutory duty of physicians to inform patients versus unmet patients' information needs: The case of breast cancer in France," Health Policy, Elsevier, vol. 91(2), pages 162-173, July.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:sagope:v:3:y:2013:i:3:p:2158244013505293. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.