IDEAS home Printed from https://ideas.repec.org/a/sae/medema/v43y2023i7-8p863-874.html
   My bibliography  Save this article

A Prospective Cohort Study of Medical Decision-Making Roles and Their Associations with Patient Characteristics and Patient-Reported Outcomes among Patients with Heart Failure

Author

Listed:
  • Semra Ozdemir

    (Signature Program in Health Services and Systems Research, Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore
    Department of Population Health Sciences, Duke Clinical Research Institute, Duke University, USA)

  • Jia Jia Lee

    (Research Associate, Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore)

  • Khung Keong Yeo

    (National Heart Centre Singapore, Singapore)

  • Kheng Leng David Sim

    (National Heart Centre Singapore, Singapore)

  • Eric Andrew Finkelstein

    (Signature Program in Health Services and Systems Research, Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore
    Saw Swee Hock School of Public Health, National University of Singapore, Singapore
    Duke Global Health Institute, Duke University, USA)

  • Chetna Malhotra

    (Signature Program in Health Services and Systems Research, Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore)

Abstract

Objective Among patients with heart failure (HF), we examined 1) the evolution of patient involvement in decision making over 2 y, 2) the association of patient characteristics with decision-making roles, and 3) the association of decision-making roles with distress, spiritual well-being, and quality of physician communication. Methods We administered the survey every 4 mo over 24 mo to patients with New York Heart Association class 3/4 symptoms recruited from inpatient clinics. The decision-making roles were categorized as no patient involvement, physician/family-led, joint (with family and/or physicians), patient-led, or patient-alone decision making. The associations between patient characteristics and decision-making roles were assessed using a mixed-effects ordered logistic regression, whereas those between patient outcomes and decision-making roles were investigated using mixed-effects linear regressions. Results Of the 557 patients invited, 251 participated in the study. The most common roles in decision making at baseline assessment were “no involvement†(27.53%) and “patient-alone decision making†(25.10%). The proportions of different decision-making roles did not change over 2 y ( P  = 0.37). Older age (odds ratio [OR] = 0.97; P  = 0.003) and being married (OR = 0.63; P  = 0.035) were associated with lower involvement in decision making. Chinese ethnicity (OR = 1.91; P  = 0.003), higher education (OR = 1.87; P  = 0.003), awareness of terminal condition (OR = 2.00; P  

Suggested Citation

  • Semra Ozdemir & Jia Jia Lee & Khung Keong Yeo & Kheng Leng David Sim & Eric Andrew Finkelstein & Chetna Malhotra, 2023. "A Prospective Cohort Study of Medical Decision-Making Roles and Their Associations with Patient Characteristics and Patient-Reported Outcomes among Patients with Heart Failure," Medical Decision Making, , vol. 43(7-8), pages 863-874, October.
  • Handle: RePEc:sae:medema:v:43:y:2023:i:7-8:p:863-874
    DOI: 10.1177/0272989X231201609
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/0272989X231201609
    Download Restriction: no

    File URL: https://libkey.io/10.1177/0272989X231201609?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Semra Ozdemir & Isha Chaudhry & Si Ning Germaine Tan & Irene Teo & Chetna Malhotra & Rahul Malhotra & Eric Andrew Finkelstein, 2023. "Variation in Patient-Reported Decision-Making Roles in the Last Year of Life among Patients with Metastatic Cancer: A Longitudinal Study," Medical Decision Making, , vol. 43(2), pages 203-213, February.
    2. Heather Orom & Caitlin Biddle & Willie Underwood III & Christian J. Nelson & D. Lynn Homish, 2016. "What Is a “Good†Treatment Decision? Decisional Control, Knowledge, Treatment Decision Making, and Quality of Life in Men with Clinically Localized Prostate Cancer," Medical Decision Making, , vol. 36(6), pages 714-725, August.
    3. L. Aubree Shay & Jennifer Elston Lafata, 2015. "Where Is the Evidence? A Systematic Review of Shared Decision Making and Patient Outcomes," Medical Decision Making, , vol. 35(1), pages 114-131, January.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Sumayah Rodenburg-Vandenbussche & Arwen H Pieterse & Pieter M Kroonenberg & Isabelle Scholl & Trudy van der Weijden & Gre P M Luyten & Roy F P M Kruitwagen & Henk den Ouden & Ingrid V E Carlier & Iren, 2015. "Dutch Translation and Psychometric Testing of the 9-Item Shared Decision Making Questionnaire (SDM-Q-9) and Shared Decision Making Questionnaire-Physician Version (SDM-Q-Doc) in Primary and Secondary ," PLOS ONE, Public Library of Science, vol. 10(7), pages 1-15, July.
    2. Underman, Kelly & Hirshfield, Laura E., 2016. "Detached concern?: Emotional socialization in twenty-first century medical education," Social Science & Medicine, Elsevier, vol. 160(C), pages 94-101.
    3. Maya Kylén & Ulla-Karin Schön & Hélène Pessah-Rasmussen & Marie Elf, 2022. "Patient Participation and the Environment: A Scoping Review of Instruments," IJERPH, MDPI, vol. 19(4), pages 1-17, February.
    4. Francesco Baratta & Francesco Angelico & Maria Del Ben, 2023. "Challenges in Improving Adherence to Diet and Drug Treatment in Hypercholesterolemia Patients," IJERPH, MDPI, vol. 20(10), pages 1-12, May.
    5. Mara Gorli & Serena Barello, 2021. "Patient Centredness, Values, Equity and Sustainability: Professional, Organizational and Institutional Implications," Sustainability, MDPI, vol. 13(23), pages 1-7, November.
    6. Rami H. Al-Rifai & Iffat Elbarazi & Nasloon Ali & Tom Loney & Abderrahim Oulhaj & Luai A. Ahmed, 2020. "Knowledge and Preference Towards Mode of Delivery among Pregnant Women in the United Arab Emirates: The Mutaba’ah Study," IJERPH, MDPI, vol. 18(1), pages 1-11, December.
    7. Yuko Goto & Hisayuki Miura, 2022. "Validation of the Novel Interprofessional Shared Decision-Making Questionnaire to Facilitate Multidisciplinary Team Building in Patient-Centered Care," IJERPH, MDPI, vol. 19(22), pages 1-13, November.
    8. Lama Sultan & Basim Alsaywid & Nynke De Jong & Jascha De Nooijer, 2022. "Current Trends in Interprofessional Shared Decision-Making Programmes in Health Professions Education: A Scoping Review," Sustainability, MDPI, vol. 14(20), pages 1-39, October.
    9. Charlotte Ytterberg & Hanne Kaae Kristensen & Malin Tistad & Lena von Koch, 2020. "Factors related to met needs for rehabilitation 6 years after stroke," PLOS ONE, Public Library of Science, vol. 15(1), pages 1-15, January.
    10. Arwen H. Pieterse & Kim Brandes & Jessica de Graaf & Joyce E. de Boer & Nanon H. M. Labrie & Anouk Knops & Cornelia F. Allaart & Johanna E. A. Portielje & Willem Jan W. Bos & Anne M. Stiggelbout, 2022. "Fostering Patient Choice Awareness and Presenting Treatment Options Neutrally: A Randomized Trial to Assess the Effect on Perceived Room for Involvement in Decision Making," Medical Decision Making, , vol. 42(3), pages 375-386, April.
    11. Ruth E Pel-Littel & Cynthia S Hofman & Liesje Yu & Silke F Metzelthin & Franca H Leeuwis & Jeanet W Blom & B M Buurman & Mirella M Minkman, 2019. "Recommendations of older adults on how to use the PROM ‘TOPICS-MDS’ in healthcare conversations: A Delphi study," PLOS ONE, Public Library of Science, vol. 14(11), pages 1-17, November.
    12. Anders Broström & Bengt Fridlund & Berith Hedberg & Per Nilsen & Martin Ulander, 2017. "Communication between patients with obstructive sleep apnoea syndrome and healthcare personnel during the initial visit to a continuous positive airway pressure clinic," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(3-4), pages 568-577, February.
    13. Footman, Katy, 2024. "The illusion of treatment choice in abortion care: A qualitative study of comparative care experiences in England and Wales," Social Science & Medicine, Elsevier, vol. 348(C).
    14. Michael Brown & Anna Higgins & Juliet MacArthur, 2020. "Transition from child to adult health services: A qualitative study of the views and experiences of families of young adults with intellectual disabilities," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(1-2), pages 195-207, January.
    15. Meron Hirpa & Tinsay Woreta & Hilena Addis & Sosena Kebede, 2020. "What matters to patients? A timely question for value-based care," PLOS ONE, Public Library of Science, vol. 15(7), pages 1-16, July.
    16. Semra Ozdemir & Isha Chaudhry & Si Ning Germaine Tan & Irene Teo & Chetna Malhotra & Rahul Malhotra & Eric Andrew Finkelstein, 2023. "Variation in Patient-Reported Decision-Making Roles in the Last Year of Life among Patients with Metastatic Cancer: A Longitudinal Study," Medical Decision Making, , vol. 43(2), pages 203-213, February.
    17. repec:oup:jconrs:v:49:y:2023:i:5:p:926-939. is not listed on IDEAS
    18. Jayoung Han & Paiboon Jungsuwadee & Olufunmilola Abraham & Dongwoo Ko, 2018. "Shared Decision-Making and Women’s Adherence to Breast and Cervical Cancer Screenings," IJERPH, MDPI, vol. 15(7), pages 1-13, July.
    19. Aleksandra Kołtuniuk & Justyna Chojdak-Łukasiewicz, 2022. "Adherence to Therapy in Patients with Multiple Sclerosis—Review," IJERPH, MDPI, vol. 19(4), pages 1-9, February.
    20. Loïs F. van de Water & Danique W. Bos–van den Hoek & Steven C. Kuijper & Hanneke W. M. van Laarhoven & Geert-Jan Creemers & Serge E. Dohmen & Helle-Brit Fiebrich & Petronella B. Ottevanger & Dirkje, 2024. "Potential Adverse Outcomes of Shared Decision Making about Palliative Cancer Treatment: A Secondary Analysis of a Randomized Trial," Medical Decision Making, , vol. 44(1), pages 89-101, January.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:medema:v:43:y:2023:i:7-8:p:863-874. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.