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Factors related to met needs for rehabilitation 6 years after stroke

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  • Charlotte Ytterberg
  • Hanne Kaae Kristensen
  • Malin Tistad
  • Lena von Koch

Abstract

Introduction: Research on stroke rehabilitation mainly concerns the first year of recovery, and there is a lack of knowledge regarding long-term rehabilitation needs and associated factors. Aim: The aim was to explore the perceived needs for rehabilitation services of people six years after stroke and factors associated with having rehabilitation services needs met. Methods: The study was a 6-year follow up of a prospective study on the rehabilitation process after stroke. Data on perceived needs for rehabilitation, personal factors, disease specific factors, and patient-reported disability were collected through face-to-face interviews in the participants’ homes. Logistic regression models were created to explore associations between having rehabilitation services needs met in 11 problem areas (dependent variable) and the independent variables: involvement in decisions regarding care and treatment, sex, age, sense of coherence, self-defined level of private financing, stroke severity, frequency of social everyday activities, perceived impact of stroke, and life satisfaction. Results: The 121 participants had a mean age of 63 years at stroke onset and 58% were men. In all problem areas the majority (53–88%) reported having needs met at six years after stroke, however 47% reported unmet needs regarding fatigue and 45% regarding mobility. A lower perceived impact on participation was found to be associated with having rehabilitation services needs met in seven problem areas: mobility, falls, pain, fatigue, concentration, memory, and sight. The strongest association for having needs met was found for the independent variable, involvement in care and treatment, within the three problem areas mobility, falls, and speaking. Conclusion: In a long-term perspective, there were several modifiable factors associated with having rehabilitation services needs met. The most prominent were perceived involvement in care and treatment, and perceived participation. These factors had a stronger association with having rehabilitation services needs met than disease specific factors six years after stroke.

Suggested Citation

  • Charlotte Ytterberg & Hanne Kaae Kristensen & Malin Tistad & Lena von Koch, 2020. "Factors related to met needs for rehabilitation 6 years after stroke," PLOS ONE, Public Library of Science, vol. 15(1), pages 1-15, January.
    • Handle: RePEc:plo:pone00:0227867
    DOI: 10.1371/journal.pone.0227867
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    References listed on IDEAS

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    1. Avvai Singam & Charlotte Ytterberg & Kerstin Tham & Lena von Koch, 2015. "Participation in Complex and Social Everyday Activities Six Years after Stroke: Predictors for Return to Pre-Stroke Level," PLOS ONE, Public Library of Science, vol. 10(12), pages 1-12, December.
    2. L. Aubree Shay & Jennifer Elston Lafata, 2015. "Where Is the Evidence? A Systematic Review of Shared Decision Making and Patient Outcomes," Medical Decision Making, , vol. 35(1), pages 114-131, January.
    3. Janne Marieke Veerbeek & Erwin van Wegen & Roland van Peppen & Philip Jan van der Wees & Erik Hendriks & Marc Rietberg & Gert Kwakkel, 2014. "What Is the Evidence for Physical Therapy Poststroke? A Systematic Review and Meta-Analysis," PLOS ONE, Public Library of Science, vol. 9(2), pages 1-1, February.
    4. Marie Elf & Gunilla Eriksson & Sverker Johansson & Lena von Koch & Charlotte Ytterberg, 2016. "Self-Reported Fatigue and Associated Factors Six Years after Stroke," PLOS ONE, Public Library of Science, vol. 11(8), pages 1-9, August.
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