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Parental Experiences: Care of Children With High and Intermediate Imperforate Anus

Author

Listed:
  • Maria Öjmyr-Joelsson

    (Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Division of Pediatric Surgery)

  • Margret Nisell

    (Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Child and Adolescent Psychiatric Unit)

  • Björn Frenckner

    (Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Division of Pediatric Surgery)

  • Per-Anders Rydelius

    (Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Child and Adolescent Psychiatric Unit)

  • Kyllike Christensson

    (Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Reproductive and Perinatal Health Care Department of Caring and Public Health Sciences, Mälardalens Högskola, Sweden)

Abstract

In this study parental experiences of care of children with high and intermediate imperforate anus were evaluated. A group of 45 parents of children with high and intermediate imperforate anus and two control groups participated. Data collection with individual questionnaires concerning the child's hospital care, information to the parent and the child, and involvement in the care of the child were performed. Parents of children with imperforate anus reported being less satisfied with the care of their child, and they were less content with information about their child's treatment compared with the control groups. The parents had been extremely involved in the follow-up treatment. Constipation and fecal incontinence are common and involve suffering for the children and their parents. Parents have to be motivated and supportive and have a great deal of patience to be able to put up with caring for these children, and it seems as if health care professionals have underestimated their problems.

Suggested Citation

  • Maria Öjmyr-Joelsson & Margret Nisell & Björn Frenckner & Per-Anders Rydelius & Kyllike Christensson, 2006. "Parental Experiences: Care of Children With High and Intermediate Imperforate Anus," Clinical Nursing Research, , vol. 15(4), pages 290-305, November.
    • Handle: RePEc:sae:clnure:v:15:y:2006:i:4:p:290-305
    DOI: 10.1177/1054773806291856
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    References listed on IDEAS

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    1. George W. Torrance & David Feeny & William Furlong, 2001. "Visual Analog Scales," Medical Decision Making, , vol. 21(4), pages 329-334, August.
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