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Being the Next of Kin of an Adult Person With Muscular Dystrophy

Author

Listed:
  • Katrin Boström

    (Swedish Institute for Disability Research, Örebro and Linköping Universities; Center for Rehabilitation Research, Örebro County Council)

  • Gerd Ahlström

    (Helena Sunvisson Örebro University, Sweden)

  • Helena Sunvisson

Abstract

A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's ( N = 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n = 14), parent (18%, n = 7), child (21%, n = 8), sibling (15%, n = 6), and other relative (3%, n = 1). Latent content analysis is employed and involves an interpretation of the interviewtext. The results showthe meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family; the span between obligation and love; being vigilant, protective, and supportive; and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease.

Suggested Citation

  • Katrin Boström & Gerd Ahlström & Helena Sunvisson, 2006. "Being the Next of Kin of an Adult Person With Muscular Dystrophy," Clinical Nursing Research, , vol. 15(2), pages 86-104, May.
    • Handle: RePEc:sae:clnure:v:15:y:2006:i:2:p:86-104
    DOI: 10.1177/1054773805285706
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    References listed on IDEAS

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