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Implementation of Patient-Centered Education for Chronic-Disease Management in Uganda: An Effectiveness Study

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Listed:
  • Trishul Siddharthan
  • Tracy Rabin
  • Maureen E Canavan
  • Faith Nassali
  • Phillip Kirchhoff
  • Robert Kalyesubula
  • Steven Coca
  • Asghar Rastegar
  • Felix Knauf

Abstract

Background: The majority of non-communicable disease related deaths occur in low- and middle-income countries. Patient-centered care is an essential component of chronic disease management in high income settings. Objective: To examine feasibility of implementation of a validated patient-centered education tool among patients with heart failure in Uganda. Design: Mixed-methods, prospective cohort. Settings: A private and public cardiology clinic in Mulago National Referral and Teaching Hospital, Kampala, Uganda. Participants: Adults with a primary diagnosis of heart failure. Interventions: PocketDoktor Educational Booklets with patient-centered health education. Main Measures: The primary outcomes were the change in Patient Activation Measure (PAM-13), as well as the acceptability of the PocketDoktor intervention, and feasibility of implementing patient-centered education in outpatient clinical settings. Secondary outcomes included the change in satisfaction with overall clinical care and doctor-patient communication. Key Results: A total of 105 participants were enrolled at two different clinics: the Mulago Outpatient Department (public) and the Uganda Heart Institute (private). 93 participants completed follow up at 3 months and were included in analysis. The primary analysis showed improved patient activation measure scores regarding disease-specific knowledge, treatment options and prevention of exacerbations among both groups (mean change 0.94 [SD = 1.01], 1.02 [SD = 1.15], and 0.92 [SD = 0.89] among private paying patients and 1.98 [SD = 0.98], 1.93 [SD = 1.02], and 1.45 [SD = 1.02] among public paying patients, p

Suggested Citation

  • Trishul Siddharthan & Tracy Rabin & Maureen E Canavan & Faith Nassali & Phillip Kirchhoff & Robert Kalyesubula & Steven Coca & Asghar Rastegar & Felix Knauf, 2016. "Implementation of Patient-Centered Education for Chronic-Disease Management in Uganda: An Effectiveness Study," PLOS ONE, Public Library of Science, vol. 11(11), pages 1-12, November.
    • Handle: RePEc:plo:pone00:0166411
    DOI: 10.1371/journal.pone.0166411
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    1. David E. Bloom & Elizabeth Cafiero & Eva Jané-Llopis & Shafika Abrahams-Gessel & Lakshmi Reddy Bloom & Sana Fathima & Andrea B. Feigl & Tom Gaziano & Ali Hamandi & Mona Mowafi & Danny O’Farrell & Emre, 2012. "The Global Economic Burden of Noncommunicable Diseases," PGDA Working Papers 8712, Program on the Global Demography of Aging.
    2. Samuel G Smith & Laura M Curtis & Jane Wardle & Christian von Wagner & Michael S Wolf, 2013. "Skill Set or Mind Set? Associations between Health Literacy, Patient Activation and Health," PLOS ONE, Public Library of Science, vol. 8(9), pages 1-7, September.
    3. Shah Ebrahim & Neil Pearce & Liam Smeeth & Juan P Casas & Shabbar Jaffar & Peter Piot, 2013. "Tackling Non-Communicable Diseases In Low- and Middle-Income Countries: Is the Evidence from High-Income Countries All We Need?," PLOS Medicine, Public Library of Science, vol. 10(1), pages 1-6, January.
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    1. Jason Hearn & Isaac Ssinabulya & Jeremy I Schwartz & Ann R Akiteng & Heather J Ross & Joseph A Cafazzo, 2019. "Self-management of non-communicable diseases in low- and middle-income countries: A scoping review," PLOS ONE, Public Library of Science, vol. 14(7), pages 1-14, July.

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