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Traumatic Brain Injury: Unmet Support Needs of Caregivers and Families in Florida

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  • Christina Dillahunt-Aspillaga
  • Tammy Jorgensen-Smith
  • Sarah Ehlke
  • Melanie Sosinski
  • Douglas Monroe
  • Jennifer Thor

Abstract

Sustaining a Traumatic Brain Injury results in familial strain due to the significant impact the injury has upon the role and function of individuals and their families at home and in the community. Using the Stress Process Model of Caregiving, a caregiver needs assessment survey was developed and conducted to better understand the needs of individuals with a Traumatic Brain Injury and their caregivers. Survey results indicate that caregivers experience many challenges including unmet needs in areas of relational supports such as maintaining relationships, long-term emotional and financial support for themselves and the survivor, and the need for a patient or caregiver advocate. Implications for future practice are presented.

Suggested Citation

  • Christina Dillahunt-Aspillaga & Tammy Jorgensen-Smith & Sarah Ehlke & Melanie Sosinski & Douglas Monroe & Jennifer Thor, 2013. "Traumatic Brain Injury: Unmet Support Needs of Caregivers and Families in Florida," PLOS ONE, Public Library of Science, vol. 8(12), pages 1-9, December.
    • Handle: RePEc:plo:pone00:0082896
    DOI: 10.1371/journal.pone.0082896
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    References listed on IDEAS

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    1. Finkelstein, Eric A. & Corso, Phaedra S. & Miller, Ted R., 2006. "The Incidence and Economic Burden of Injuries in the United States," OUP Catalogue, Oxford University Press, number 9780195179484.
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    Cited by:

    1. Christina Dillahunt-Aspillaga & Dezon Finch & Jill Massengale & Tracy Kretzmer & Stephen L Luther & James A McCart, 2014. "Using Information from the Electronic Health Record to Improve Measurement of Unemployment in Service Members and Veterans with mTBI and Post-Deployment Stress," PLOS ONE, Public Library of Science, vol. 9(12), pages 1-21, December.

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