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The Perspectives of Māori and Pasifika Mate Kirikōpū (Endometriosis) Patients in Aotearoa New Zealand

Author

Listed:
  • Katherine Ellis

    (Department of Chemical and Process Engineering, University of Canterbury, Christchurch 8041, New Zealand
    Endometriosis New Zealand, Christchurch 8024, New Zealand)

  • Jordan Tewhaiti-Smith

    (Te Whatu Ora Waitaha, Christchurch 8011, New Zealand
    Medical Research Institute of New Zealand, Wellington 6021, New Zealand)

  • Deborah Munro

    (Department of Mechanical Engineering, University of Canterbury, Christchurch 8041, New Zealand
    Biomolecular Interaction Centre, University of Canterbury, Christchurch 8041, New Zealand)

  • Rachael Wood

    (Department of Chemical and Process Engineering, University of Canterbury, Christchurch 8041, New Zealand
    Biomolecular Interaction Centre, University of Canterbury, Christchurch 8041, New Zealand)

Abstract

Experiences with endometriosis have been understudied in indigenous and people of colour populations. This study aimed to investigate the experiences of Māori and Pasifika endometriosis patients in Aotearoa New Zealand. Twenty-seven Māori endometriosis participants from 21 iwi (tribes), and 10 Pasifika participants from 8 different island nations participated in online, asynchronous, anonymous text-based discussions about their endometriosis journeys. Their explanations were analysed qualitatively with an inductive thematic approach. The average delay from symptom onset to a confirmed or suspected endometriosis diagnosis was 11.6 ± 7.8 years in the Māori cohort and 12.4 ± 6.2 years in the Pasifika cohort. There were high levels of dissatisfaction with the availability of treatment, with 66.7% of Māori participants and 60.0% of Pasifika participants feeling that endometriosis treatment was not readily available to them. Poor experiences with the medical profession might dissuade Māori and Pasifika patients from seeking care, exacerbating a culture of distrust and perpetuating healthcare inequities. This could potentially be improved by increasing the capacity to take time for relationship building within general practice or through the incorporation of cultural advisors to support relationship establishment that emphasises holistic consideration of patient well-being and culturally safe care.

Suggested Citation

  • Katherine Ellis & Jordan Tewhaiti-Smith & Deborah Munro & Rachael Wood, 2024. "The Perspectives of Māori and Pasifika Mate Kirikōpū (Endometriosis) Patients in Aotearoa New Zealand," Societies, MDPI, vol. 14(4), pages 1-21, March.
    • Handle: RePEc:gam:jsoctx:v:14:y:2024:i:4:p:46-:d:1367575
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    References listed on IDEAS

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    1. Ricci B Harris & James Stanley & Donna M Cormack, 2018. "Racism and health in New Zealand: Prevalence over time and associations between recent experience of racism and health and wellbeing measures using national survey data," PLOS ONE, Public Library of Science, vol. 13(5), pages 1-22, May.
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