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Models of Support for Caregivers and Patients with the Post-COVID-19 Condition: A Scoping Review

Author

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  • Tahissa Frota Cavalcante

    (Health Sciences Institute, University for International Integration of the Afro-Brazilian Lusophony (UNILAB), Redençao 62790-000, Ceará, Brazil)

  • Caroline Evaristo Lourenço

    (Health Sciences Institute, University for International Integration of the Afro-Brazilian Lusophony (UNILAB), Redençao 62790-000, Ceará, Brazil)

  • José Erivelton de Souza Maciel Ferreira

    (Health Sciences Institute, University for International Integration of the Afro-Brazilian Lusophony (UNILAB), Redençao 62790-000, Ceará, Brazil)

  • Lídia Rocha Oliveira

    (Health Sciences Institute, University for International Integration of the Afro-Brazilian Lusophony (UNILAB), Redençao 62790-000, Ceará, Brazil)

  • João Cruz Neto

    (Health Sciences Institute, University for International Integration of the Afro-Brazilian Lusophony (UNILAB), Redençao 62790-000, Ceará, Brazil)

  • Josemberg Pereira Amaro

    (Health Sciences Institute, University for International Integration of the Afro-Brazilian Lusophony (UNILAB), Redençao 62790-000, Ceará, Brazil)

  • Rafaella Pessoa Moreira

    (Health Sciences Institute, University for International Integration of the Afro-Brazilian Lusophony (UNILAB), Redençao 62790-000, Ceará, Brazil)

Abstract

Background: In December 2019, an outbreak of the coronavirus disease 2019 (COVID-19), caused by the novel severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), occurred in the city of Wuhan, China. On 30 January 2020, the World Health Organization declared the outbreak a public health emergency of international concern. In October 2021, with the advancement of the disease, the World Health Organization defined the post-COVID-19 condition. The post-COVID-19 condition occurs in individuals with a history of probable or confirmed infection with SARS-CoV-2, usually 3 months after the onset of the disease. The chronicity of COVID-19 has increased the importance of recognizing caregivers and their needs. Methods: We conducted a scoping review following international guidelines to map the models of support for caregivers and patients with the post-COVID-19 condition. The searches were conducted in electronic databases and the grey literature. The Population, Concept, and Context framework was used: Population: patients with the post-COVID-19 condition and caregivers; Concept: models of caregiver and patient support; and Context: post-COVID-19 condition. A total of 3258 records were identified through the electronic search, and 20 articles were included in the final sample. Results: The studies approached existing guidelines and health policies for post-COVID-19 condition patients and support services for patients and home caregivers such as telerehabilitation, multidisciplinary care, hybrid models of care, and follow-up services. Only one study specifically addressed the home caregivers of patients with this clinical condition. Conclusions: The review indicates that strategies such as telerehabilitation are effective for training and monitoring the patient–family dyad, but the conditions of access and digital literacy must be considered.

Suggested Citation

  • Tahissa Frota Cavalcante & Caroline Evaristo Lourenço & José Erivelton de Souza Maciel Ferreira & Lídia Rocha Oliveira & João Cruz Neto & Josemberg Pereira Amaro & Rafaella Pessoa Moreira, 2023. "Models of Support for Caregivers and Patients with the Post-COVID-19 Condition: A Scoping Review," IJERPH, MDPI, vol. 20(3), pages 1-12, January.
  • Handle: RePEc:gam:jijerp:v:20:y:2023:i:3:p:2563-:d:1052925
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    References listed on IDEAS

    as
    1. Abayomi Salawu & Angela Green & Michael G. Crooks & Nina Brixey & Denise H. Ross & Manoj Sivan, 2020. "A Proposal for Multidisciplinary Tele-Rehabilitation in the Assessment and Rehabilitation of COVID-19 Survivors," IJERPH, MDPI, vol. 17(13), pages 1-13, July.
    2. Florent Besnier & Béatrice Bérubé & Jacques Malo & Christine Gagnon & Catherine-Alexandra Grégoire & Martin Juneau & François Simard & Philippe L’Allier & Anil Nigam & Josep Iglésies-Grau & Thomas Vin, 2022. "Cardiopulmonary Rehabilitation in Long-COVID-19 Patients with Persistent Breathlessness and Fatigue: The COVID-Rehab Study," IJERPH, MDPI, vol. 19(7), pages 1-11, March.
    3. Sally Fowler-Davis & Rachel Young & Tom Maden-Wilkinson & Waqas Hameed & Elizabeth Dracas & Eleanor Hurrell & Romila Bahl & Elisabeth Kilcourse & Rebecca Robinson & Robert Copeland, 2021. "Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK," IJERPH, MDPI, vol. 18(24), pages 1-16, December.
    4. Monica Pinto & Francesca Gimigliano & Stefania De Simone & Massimo Costa & Attilio A. M. Bianchi & Giovanni Iolascon, 2020. "Post-Acute COVID-19 Rehabilitation Network Proposal: From Intensive to Extensive and Home-Based IT Supported Services," IJERPH, MDPI, vol. 17(24), pages 1-14, December.
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