A Community-Based Participatory Framework to Co-Develop Patient Education Materials (PEMs) for Rare Diseases: A Model Transferable across Diseases
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- Iraj Poureslami & Jacek Kopec & Noah Tregobov & Jessica Shum & Rick Sawatzky & Richard Hohn & J. Mark FitzGerald, 2021. "An Integrated Framework to Conceptualize and Develop the Vancouver Airways Health Literacy Tool (VAHLT)," IJERPH, MDPI, vol. 18(16), pages 1-16, August.
- Miguel Arriaga & Rita Francisco & Paulo Nogueira & Jorge Oliveira & Carlota Silva & Gisele Câmara & Kristine Sørensen & Christina Dietscher & Andreia Costa, 2022. "Health Literacy in Portugal: Results of the Health Literacy Population Survey Project 2019–2021," IJERPH, MDPI, vol. 19(7), pages 1-15, April.
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Keywords
patient education material (PEM); rare diseases; community-based participatory research; public and patient involvement (PPI); health literacy; patient empowerment; people-centric; plain-language; congenital disorders of glycosylation (CDG);All these keywords.
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