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International Survey of Specialist Fetal Alcohol Spectrum Disorder Diagnostic Clinics: Comparison of Diagnostic Approach and Considerations Regarding the Potential for Unification

Author

Listed:
  • Natasha Reid

    (Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Dianne C. Shanley

    (School of Applied Psychology, Griffith University, Gold Coast, QLD 4222, Australia
    Menzies Health Institute of Queensland, Griffith University, Gold Coast, QLD 4222, Australia)

  • Jayden Logan

    (Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Codi White

    (School of Applied Psychology, Griffith University, Gold Coast, QLD 4222, Australia
    Menzies Health Institute of Queensland, Griffith University, Gold Coast, QLD 4222, Australia)

  • Wei Liu

    (Menzies Health Institute of Queensland, Griffith University, Gold Coast, QLD 4222, Australia)

  • Erinn Hawkins

    (School of Applied Psychology, Griffith University, Gold Coast, QLD 4222, Australia
    Menzies Health Institute of Queensland, Griffith University, Gold Coast, QLD 4222, Australia)

Abstract

Fetal alcohol spectrum disorder (FASD) is a prevalent neurodevelopmental condition. Despite FASD being recognized as a clinical disorder there is no globally agreed set of diagnostic criteria. Accurate and timely diagnosis of FASD is imperative to inform clinical care, optimize outcomes for individuals accessing assessments and their families, as well as for research and prevention strategies. To inform movement towards a unified approach, the present study aimed to capture an international perspective on current FASD diagnostic criteria, as well as potential barriers and facilitators to unification. An online survey was created using REDCap and sent to clinics identified and contacted via internet searches. Quantitative data were presented using descriptive statistics and open-ended questions analysed using content analysis. The survey captured information about each clinic’s current diagnostic approach, whether they would support a unified method, and the barriers and facilitators for a consistent international FASD diagnostic approach. Fifty-five (37.4%) of 147 FASD clinics identified worldwide participated. The majority ( n = 50, 90.9%) of respondents supported a unified approach. Content analysis identified a lack of collaboration as a key barrier, while strong leadership in guideline creation and implementation emerged as a central facilitator. These barriers and facilitators can be used to guide future collaborative efforts towards implementing consistent diagnostic criteria.

Suggested Citation

  • Natasha Reid & Dianne C. Shanley & Jayden Logan & Codi White & Wei Liu & Erinn Hawkins, 2022. "International Survey of Specialist Fetal Alcohol Spectrum Disorder Diagnostic Clinics: Comparison of Diagnostic Approach and Considerations Regarding the Potential for Unification," IJERPH, MDPI, vol. 19(23), pages 1-13, November.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:23:p:15663-:d:983652
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    References listed on IDEAS

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    1. Nicole Hayes & Lisa K. Akison & Sarah Goldsbury & Nicole Hewlett & Elizabeth J. Elliott & Amy Finlay-Jones & Dianne C. Shanley & Kerryn Bagley & Andi Crawford & Haydn Till & Alison Crichton & Rowena F, 2022. "Key Stakeholder Priorities for the Review and Update of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder: A Qualitative Descriptive Study," IJERPH, MDPI, vol. 19(10), pages 1-20, May.
    2. Tony Chambers & Ching-Hsiao Chiang, 2012. "Understanding undergraduate students’ experience: a content analysis using NSSE open-ended comments as an example," Quality & Quantity: International Journal of Methodology, Springer, vol. 46(4), pages 1113-1123, June.
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