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Key Stakeholder Priorities for the Review and Update of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder: A Qualitative Descriptive Study

Author

Listed:
  • Nicole Hayes

    (Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Lisa K. Akison

    (Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia
    School of Biomedical Sciences, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Sarah Goldsbury

    (Māori Indigenous Health Innovation, University of Otago Christchurch, Christchurch 8013, New Zealand)

  • Nicole Hewlett

    (Centre for Healthcare Transformation, Queensland University of Technology, Brisbane, QLD 4059, Australia
    Wellbeing and Preventable Chronic Diseases Division, Menzies School of Health Research, Darwin, NT 0811, Australia
    National Organisation for Fetal Alcohol Spectrum Disorder Australia, Adelaide, SA 5000, Australia)

  • Elizabeth J. Elliott

    (Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, NSW 2006, Australia
    The Sydney Children’s Hospitals Network, Sydney, NSW 2145, Australia)

  • Amy Finlay-Jones

    (Telethon Kids Institute, Perth, WA 6009, Australia
    School of Population Health, Curtin University, Perth, WA 6102, Australia)

  • Dianne C. Shanley

    (Menzies Health Institute of Queensland, Griffith University, Gold Coast, QLD 4222, Australia
    School of Applied Psychology, Griffith University, Gold Coast, QLD 4222, Australia)

  • Kerryn Bagley

    (La Trobe Rural Health School, La Trobe University, Bendigo, VIC 3552, Australia
    Living with Disability Research Centre, La Trobe University, Melbourne, VIC 3083, Australia)

  • Andi Crawford

    (Department of Psychological Medicine, Faculty of Medical and Health Science, The University of Auckland, Auckland 1023, New Zealand
    Te Ara Manapou, Parenting and Pregnancy Service, Hawke’s Bay District Health Board, Hastings 4120, New Zealand)

  • Haydn Till

    (Child Development Service, Gold Coast Hospital and Health Service, Southport, QLD 4215, Australia)

  • Alison Crichton

    (Victoria Fetal Alcohol Service, Monash Children’s Hospital, Clayton, VIC 3163, Australia
    Department of Paediatrics, Monash University, Clayton, VIC 3163, Australia)

  • Rowena Friend

    (Patches Assessment Service, Berrimbah, NT 0828, Australia)

  • Karen M. Moritz

    (Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia
    School of Biomedical Sciences, The University of Queensland, Brisbane, QLD 4072, Australia)

  • Raewyn Mutch

    (Telethon Kids Institute, Perth, WA 6009, Australia
    Child and Adolescent Health Service, Department of Health, Perth Children’s Hospital, Perth, WA 6009, Australia
    Faculty of Health Sciences, Curtin Medical School, Curtin University, Perth, WA 6102, Australia
    School of Medicine, Dentistry and Health Sciences, University of Western Australia, Perth, WA 6009, Australia)

  • Sophie Harrington

    (National Organisation for Fetal Alcohol Spectrum Disorder Australia, Adelaide, SA 5000, Australia)

  • Andrew Webster

    (West Moreton Health, Ipswich, QLD 4305, Australia)

  • Natasha Reid

    (Child Health Research Centre, The University of Queensland, Brisbane, QLD 4072, Australia)

Abstract

Since the 2016 release of the Australian Guide to the Diagnosis of Fetal Alcohol Spectrum Disorder (FASD), considerable progress has been made in the identification and diagnosis of the disorder. As part of a larger process to review and update the Guide, the aim of this study was to identify review priorities from a broad range of stakeholders involved in the assessment and diagnosis of FASD. Sixty-two stakeholders, including healthcare practitioners, researchers, other specialists, individuals with cultural expertise, lived experience and consumer representatives completed an online survey asking them to describe up to five priorities for the review of the Australian Guide to the Diagnosis of FASD. A total of 267 priorities were described. Content analysis of responses revealed priority areas relating to diagnostic criteria ( n = 82, 30.7%), guideline content ( n = 91, 34.1%), guideline dissemination ( n = 15, 5.6%) and guideline implementation ( n = 63, 23.6%). Other considerations included prevention and screening of FASD ( n = 16, 6%). Engaging stakeholders in setting priorities will ensure the revised Australian Guide can be as relevant and meaningful as possible for the primary end-users and that it meets the needs of individuals with lived experience who will be most affected by the diagnosis.

Suggested Citation

  • Nicole Hayes & Lisa K. Akison & Sarah Goldsbury & Nicole Hewlett & Elizabeth J. Elliott & Amy Finlay-Jones & Dianne C. Shanley & Kerryn Bagley & Andi Crawford & Haydn Till & Alison Crichton & Rowena F, 2022. "Key Stakeholder Priorities for the Review and Update of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder: A Qualitative Descriptive Study," IJERPH, MDPI, vol. 19(10), pages 1-20, May.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:10:p:5823-:d:812527
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    References listed on IDEAS

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    1. Tony Chambers & Ching-Hsiao Chiang, 2012. "Understanding undergraduate students’ experience: a content analysis using NSSE open-ended comments as an example," Quality & Quantity: International Journal of Methodology, Springer, vol. 46(4), pages 1113-1123, June.
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    Cited by:

    1. Nicole Hewlett & Lorian Hayes & Robyn Williams & Sharynne Hamilton & Lorelle Holland & Alana Gall & Michael Doyle & Sarah Goldsbury & Nirosha Boaden & Natasha Reid, 2023. "Development of an Australian FASD Indigenous Framework: Aboriginal Healing-Informed and Strengths-Based Ways of Knowing, Being and Doing," IJERPH, MDPI, vol. 20(6), pages 1-25, March.
    2. Natasha Reid & Dianne C. Shanley & Jayden Logan & Codi White & Wei Liu & Erinn Hawkins, 2022. "International Survey of Specialist Fetal Alcohol Spectrum Disorder Diagnostic Clinics: Comparison of Diagnostic Approach and Considerations Regarding the Potential for Unification," IJERPH, MDPI, vol. 19(23), pages 1-13, November.

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    1. Natasha Reid & Dianne C. Shanley & Jayden Logan & Codi White & Wei Liu & Erinn Hawkins, 2022. "International Survey of Specialist Fetal Alcohol Spectrum Disorder Diagnostic Clinics: Comparison of Diagnostic Approach and Considerations Regarding the Potential for Unification," IJERPH, MDPI, vol. 19(23), pages 1-13, November.

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