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Measuring Family Quality of Life: Scoping Review of the Available Scales and Future Directions

Author

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  • Ghaleb H. Alnahdi

    (Special Education Department, College of Education, Prince Sattam Bin Abdulaziz University, Al-Kharj 11942, Saudi Arabia)

  • Arwa Alwadei

    (Special Education Department, College of Education, Prince Sattam Bin Abdulaziz University, Al-Kharj 11942, Saudi Arabia)

  • Flora Woltran

    (Centre for Teacher Education, Department of Education, University of Vienna, 1010 Vienna, Austria)

  • Susanne Schwab

    (Centre for Teacher Education, Department of Education, University of Vienna, 1010 Vienna, Austria
    Optentia Research Focus Area, North-West University Vanderbijlpark, 1174 Hendrick Van Eck Boulevard, Vanderbijlpark 1900, South Africa)

Abstract

The lack of quality of life is a key issue for families with children with an intellectual disability. While the quality of life for people with disabilities has previously been researched as an individual variable, this has now shifted to include family members. The purpose of this study was to conduct a review of the studies measuring the quality of life of families with an intellectually disabled member, in order to identify the most commonly used scales and their psychometric properties. Method: Data were collected from six databases (ERIC, Web of Science, Scopus, CINAHL, MedLine, and Google Scholar), and this search yielded 3948 studies. One hundred and twenty studies that met the inclusion criteria were included in this study. Results: Nine scales were used in the last years to measure the quality of life for families with individuals with an intellectual disability. The Beach Center scale was the most common scale, followed by the Family Quality of Life Survey and the World Health Organization’s quality of life assessment (WHOQoL-BREF). The results showed that the included studies in the review lack the consideration of a broader population representing the different types of cultures with different socioeconomic backgrounds. Key aspects used to assess the FQoL are environmental factors (proximal and distal factors), as well as economic factors. Conclusion: Although the operationalization of the FQoL often incudes several subthemes, a general agreement regarding which domains of the FQoL need to be included in the measurements, and these do not exist right now. Moreover, multidimensional scales are still rare.

Suggested Citation

  • Ghaleb H. Alnahdi & Arwa Alwadei & Flora Woltran & Susanne Schwab, 2022. "Measuring Family Quality of Life: Scoping Review of the Available Scales and Future Directions," IJERPH, MDPI, vol. 19(23), pages 1-26, November.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:23:p:15473-:d:980731
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    References listed on IDEAS

    as
    1. Pau García-Grau & R. A. McWilliam & Gabriel Martínez-Rico & Catalina P. Morales-Murillo, 2021. "Rasch Analysis of the Families in Early Intervention Quality of Life (FEIQoL) Scale," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 16(1), pages 383-399, February.
    2. Anna Balcells-Balcells & Joana M. Mas & Natasha Baqués & Cecilia Simón & Simón García-Ventura, 2020. "The Spanish Family Quality of Life Scales under and over 18 Years Old: Psychometric Properties and Families’ Perceptions," IJERPH, MDPI, vol. 17(21), pages 1-19, October.
    3. Pau García-Grau & R. A. McWilliam & Gabriel Martínez-Rico & María D. Grau-Sevilla, 2018. "Factor Structure and Internal Consistency of a Spanish Version of the Family Quality of Life (FaQoL)," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 13(2), pages 385-398, June.
    4. Lien Vanderkerken & Mieke Heyvaert & Patrick Onghena & Bea Maes, 2018. "Quality of Life in Flemish Families with a Child with an Intellectual Disability: a Multilevel Study on Opinions of Family Members and the Impact of Family Member and Family Characteristics," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 13(3), pages 779-802, September.
    5. Cristina Jenaro & Noelia Flores & Belén Gutiérrez-Bermejo & Vanessa Vega & Carmen Pérez & Maribel Cruz, 2020. "Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities," IJERPH, MDPI, vol. 17(23), pages 1-17, December.
    6. Carmen Francisco Mora & Alba Ibáñez & Anna Balcells-Balcells, 2020. "State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review," IJERPH, MDPI, vol. 17(19), pages 1-16, October.
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