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An Evaluation of the Overall Utility of Measures of Functioning Suitable for School-Aged Children on the Autism Spectrum: A Scoping Review

Author

Listed:
  • Maya Hayden-Evans

    (Curtin Autism Research Group, School of Allied Health, Curtin University, Perth 6102, Australia
    Telethon Kids Institute, University of Western Australia, Perth 6009, Australia
    Autism CRC, Long Pocket, Brisbane 4850, Australia)

  • Benjamin Milbourn

    (Curtin Autism Research Group, School of Allied Health, Curtin University, Perth 6102, Australia
    Telethon Kids Institute, University of Western Australia, Perth 6009, Australia
    Autism CRC, Long Pocket, Brisbane 4850, Australia)

  • Emily D’Arcy

    (Curtin Autism Research Group, School of Allied Health, Curtin University, Perth 6102, Australia
    Telethon Kids Institute, University of Western Australia, Perth 6009, Australia
    Autism CRC, Long Pocket, Brisbane 4850, Australia)

  • Angela Chamberlain

    (Curtin Autism Research Group, School of Allied Health, Curtin University, Perth 6102, Australia
    Telethon Kids Institute, University of Western Australia, Perth 6009, Australia
    Autism CRC, Long Pocket, Brisbane 4850, Australia)

  • Bahareh Afsharnejad

    (Curtin Autism Research Group, School of Allied Health, Curtin University, Perth 6102, Australia)

  • Kiah Evans

    (Curtin Autism Research Group, School of Allied Health, Curtin University, Perth 6102, Australia
    Telethon Kids Institute, University of Western Australia, Perth 6009, Australia
    Autism CRC, Long Pocket, Brisbane 4850, Australia
    School of Allied Health, University of Western Australia, Perth 6009, Australia)

  • Andrew J. O. Whitehouse

    (Telethon Kids Institute, University of Western Australia, Perth 6009, Australia
    Autism CRC, Long Pocket, Brisbane 4850, Australia
    School of Psychological Science, University of Western Australia, Perth 6009, Australia)

  • Sven Bölte

    (Curtin Autism Research Group, School of Allied Health, Curtin University, Perth 6102, Australia
    Center of Neurodevelopmental Disorders (KIND), Centre for Psychiatry Research, Department of Women’s and Children’s Health, Karolinska Institutet & Stockholm Health Care Services, Region Stockholm, 104 31 Stockholm, Sweden
    Child and Adolescent Psychiatry, Stockholm Health Care Services, Region Stockholm, 104 31 Stockholm, Sweden)

  • Sonya Girdler

    (Curtin Autism Research Group, School of Allied Health, Curtin University, Perth 6102, Australia
    Autism CRC, Long Pocket, Brisbane 4850, Australia
    School of Allied Health, University of Western Australia, Perth 6009, Australia
    Center of Neurodevelopmental Disorders (KIND), Centre for Psychiatry Research, Department of Women’s and Children’s Health, Karolinska Institutet & Stockholm Health Care Services, Region Stockholm, 104 31 Stockholm, Sweden)

Abstract

A diagnosis of an autism spectrum condition (autism) provides limited information regarding an individual’s level of functioning, information key in determining support and funding needs. Using the framework introduced by Arksey and O’Malley, this scoping review aimed to identify measures of functioning suitable for school-aged children on the autism spectrum and evaluate their overall utility, including content validity against the International Classification of Functioning, Disability and Health (ICF) and the ICF Core Sets for Autism. The overall utility of the 13 included tools was determined using the Outcome Measures Rating Form (OMRF), with the Adaptive Behavior Assessment System (ABAS-3) receiving the highest overall utility rating. Content validity of the tools in relation to the ICF and ICF Core Sets for Autism varied, with few assessment tools including any items linking to Environmental Factors of the ICF. The ABAS-3 had the greatest total number of codes linking to the Comprehensive ICF Core Set for Autism while the Vineland Adaptive Behavior Scales (Vineland-3) had the greatest number of unique codes linking to both the Comprehensive ICF Core Set for Autism and the Brief ICF Core Set for Autism (6–16 years). Measuring functioning of school-aged children on the spectrum can be challenging, however, it is important to accurately capture their abilities to ensure equitable and individualised access to funding and supports.

Suggested Citation

  • Maya Hayden-Evans & Benjamin Milbourn & Emily D’Arcy & Angela Chamberlain & Bahareh Afsharnejad & Kiah Evans & Andrew J. O. Whitehouse & Sven Bölte & Sonya Girdler, 2022. "An Evaluation of the Overall Utility of Measures of Functioning Suitable for School-Aged Children on the Autism Spectrum: A Scoping Review," IJERPH, MDPI, vol. 19(21), pages 1-29, October.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:21:p:14114-:d:956875
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    References listed on IDEAS

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    1. Fadi Thabtah & David Peebles, 2019. "Early Autism Screening: A Comprehensive Review," IJERPH, MDPI, vol. 16(18), pages 1-28, September.
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    Cited by:

    1. Kiah Evans & Andrew J. O. Whitehouse & Emily D’Arcy & Maya Hayden-Evans & Kerry Wallace & Rebecca Kuzminski & Rebecca Thorpe & Sonya Girdler & Benjamin Milbourn & Sven Bölte & Angela Chamberlain, 2022. "Perceived Support Needs of School-Aged Young People on the Autism Spectrum and Their Caregivers," IJERPH, MDPI, vol. 19(23), pages 1-24, November.

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