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Trans Expertise and the Revision and Translation of ICD-11: An Analysis of Available French Data from a Trans Perspective

Author

Listed:
  • Anna Baleige

    (EA 75-05 Éducation Éthique Santé, Faculté de Médecine, Université François-Rabelais Tours, 2 Boulevard Tonnellé, 37044 Tours, France)

  • Mathilde Guernut

    (UMR 8163 Savoirs, Textes, Langage, CNRS, Université de Lille, Rue du Barreau, BP 60149, 59653 Villeneuve d’Ascq, France)

  • Frédéric Denis

    (EA 75-05 Éducation Éthique Santé, Faculté de Médecine, Université François-Rabelais Tours, 2 Boulevard Tonnellé, 37044 Tours, France
    Service d’Odontologie, Centre Hospitalier Universitaire de Tours, 2 Boulevard Tonnellé, 37044 Tours, France)

Abstract

Transgender and gender diverse (TGD) individuals’ depsychopathologization in the eleventh revision of the International Classification of Diseases (ICD-11) faces systemic discriminations built-in epistemic pipelines. Based on an analysis of unexploited data from ICD-11 and the French translation process, this article addresses power issues in participatory research and systemic discrimination within a socio-cultural context. We used a peer-driven participatory approach to conduct qualitative analyses of the French version of the ICD based on contributions from 72 TGD participants in the French study for ICD-11. The results highlight a major incongruence between participants’ propositions and the final official translation. Alternative terms were proposed and discussed by participants in regard to usage and concepts, but also encompassed participation and perceived futility of maintaining pathologization. We found discrepancies in the French publication and translation processes, respectively on gender categorization and back translation. These results question the relevance and implementation of ICD-11 for TGD communities and highlight failures at all three stages of the official French translation. Power issues have an impact on knowledge production and, while mechanisms vary, all relate to epistemic injustice. Involving TGD communities in all stages of medical knowledge production processes would reduce transphobic biases. Individuals with personal stakes involved in politicized research areas appear all the more necessary today.

Suggested Citation

  • Anna Baleige & Mathilde Guernut & Frédéric Denis, 2022. "Trans Expertise and the Revision and Translation of ICD-11: An Analysis of Available French Data from a Trans Perspective," IJERPH, MDPI, vol. 19(19), pages 1-11, September.
  • Handle: RePEc:gam:jijerp:v:19:y:2022:i:19:p:11983-:d:921872
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    References listed on IDEAS

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    1. Maria Elisa Castro-Peraza & Jesús Manuel García-Acosta & Naira Delgado & Ana María Perdomo-Hernández & Maria Inmaculada Sosa-Alvarez & Rosa Llabrés-Solé & Nieves Doria Lorenzo-Rocha, 2019. "Gender Identity: The Human Right of Depathologization," IJERPH, MDPI, vol. 16(6), pages 1-11, March.
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    Cited by:

    1. Anna Baleige & Mathilde Guernut & Frédéric Denis, 2022. "Impact of Depsychopathologization of Transgender and Gender Diverse Individuals in ICD-11 on Care Delivery: Looking at Trans Expertise through a Trans Lens," IJERPH, MDPI, vol. 19(20), pages 1-13, October.

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