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Causes of and Alternatives to Medication for Behaviours That Challenge in People with Intellectual Disabilities: Direct Care Providers’ Perspectives

Author

Listed:
  • Shoumitro (Shoumi) Deb

    (Department of Brain Sciences, Faculty of Medicine, Imperial College London, 2nd Floor Commonwealth Building, Du Cane Road, London W12 0NN, UK)

  • Bharati Limbu

    (Department of Brain Sciences, Faculty of Medicine, Imperial College London, 2nd Floor Commonwealth Building, Du Cane Road, London W12 0NN, UK)

  • Gemma L. Unwin

    (School of Psychology, University of Birmingham, 52 Pritchatts Road, Room 314, Edgbaston, Birmingham B15 2TT, UK)

  • Tim Weaver

    (Department of Health & Social Care, School of Health Social Care and Education, Middlesex University, London NW4 4BT, UK)

Abstract

Behaviours that challenge (BtC), such as aggression and self-injury, are manifested by many people with intellectual disabilities (ID). National and international guidelines recommend non-pharmacological psychosocial intervention before considering medication to address BtC. Support staff play a pivotal role in the prescription process. Using coproduction, we developed a training programme for support staff, called SPECTROM, to give them knowledge and empower them to question inappropriate prescriptions and ask for the discontinuation of medication if appropriate and instead look for ways to help people with ID when they are distressed without relying on medication. We have presented data from two focus groups that we conducted during the development of SPECTROM: one that included support staff, and another that had service managers and trainers. In these focus groups, we explored participants’ views on the use of medication to address BtC with a particular emphasis on the causes of and alternatives to medication for BtC. Along with the participants’ views, we have also presented how we have addressed these issues in the SPECTROM resources.

Suggested Citation

  • Shoumitro (Shoumi) Deb & Bharati Limbu & Gemma L. Unwin & Tim Weaver, 2022. "Causes of and Alternatives to Medication for Behaviours That Challenge in People with Intellectual Disabilities: Direct Care Providers’ Perspectives," IJERPH, MDPI, vol. 19(16), pages 1-14, August.
  • Handle: RePEc:gam:jijerp:v:19:y:2022:i:16:p:9988-:d:887291
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    References listed on IDEAS

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    1. Bharati Limbu & Gemma Unwin & Shoumitro (Shoumi) Deb, 2021. "Comprehensive Assessment of Triggers for Behaviours of Concern Scale (CATS): Initial Development," IJERPH, MDPI, vol. 18(20), pages 1-33, October.
    2. Shoumitro (Shoumi) Deb & Bharati Limbu & Gemma Unwin & Linda Woodcock & Vivien Cooper & Michael Fullerton, 2021. "Short-Term Psycho-Education for Caregivers to Reduce Overmedication of People with Intellectual Disabilities (SPECTROM): Development and Field Testing," IJERPH, MDPI, vol. 18(24), pages 1-15, December.
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    Cited by:

    1. Gerda de Kuijper & Joke de Haan & Shoumitro Deb & Rohit Shankar, 2022. "Withdrawing Antipsychotics for Challenging Behaviours in Adults with Intellectual Disabilities: Experiences and Views of Experts by Experience," IJERPH, MDPI, vol. 19(23), pages 1-10, November.

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    1. Gerda de Kuijper & Joke de Haan & Shoumitro Deb & Rohit Shankar, 2022. "Withdrawing Antipsychotics for Challenging Behaviours in Adults with Intellectual Disabilities: Experiences and Views of Experts by Experience," IJERPH, MDPI, vol. 19(23), pages 1-10, November.
    2. Shoumitro (Shoumi) Deb & Bharati Limbu & Gemma Unwin & Linda Woodcock & Vivien Cooper & Michael Fullerton, 2021. "Short-Term Psycho-Education for Caregivers to Reduce Overmedication of People with Intellectual Disabilities (SPECTROM): Development and Field Testing," IJERPH, MDPI, vol. 18(24), pages 1-15, December.
    3. Juliana Reyes-Martín & David Simó-Pinatella & Josep Font-Roura, 2022. "Assessment of Challenging Behavior Exhibited by People with Intellectual and Developmental Disabilities: A Systematic Review," IJERPH, MDPI, vol. 19(14), pages 1-39, July.

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