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Short-Term Psycho-Education for Caregivers to Reduce Overmedication of People with Intellectual Disabilities (SPECTROM): Development and Field Testing

Author

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  • Shoumitro (Shoumi) Deb

    (Department of Brain Sciences, Faculty of Medicine, Imperial College London, Du Cane Road, London W12 0NN, UK)

  • Bharati Limbu

    (Department of Brain Sciences, Faculty of Medicine, Imperial College London, Du Cane Road, London W12 0NN, UK)

  • Gemma Unwin

    (School of Psychology, University of Birmingham, Edgbaston, Birmingham B15 2TT, UK)

  • Linda Woodcock

    (AT-Autism, 20-22 Wenlock Rd, Hoxton, London N1 7GU, UK)

  • Vivien Cooper

    (The Challenging Behaviour Foundation, The Old Courthouse, New Rd Ave, Chatham ME4 6BE, UK)

  • Michael Fullerton

    (Achieve Together, Q4, First Floor, The Square, Randalls Way, Leatherhead KT22 7TW, UK)

Abstract

People with intellectual disabilities (PwID) are at a higher risk of developing challenging behaviours (CB). Despite the poor evidence for the effectiveness of medications in managing CB, they are used widely among PwID (50–63%). The aims of our study were to develop a training programme, SPECTROM for support staff to help reduce overmedication in PwID and carry out field testing of SPECTROM including a process evaluation. We developed SPECTROM using the Experience-based co-design method that included four focus groups and a one-day co-design event. Twenty trainees received SPECTROM training. We used the Management of Aggression and Violence Attitudes Scale-Revised-Intellectual Disabilities (MAVAS-R-ID) and the Psychotropic knowledge questionnaire. A semi-structured interview and a feasibility questionnaire were used for process evaluation. SPECTROM website contains 14 modules, resources, and face-to-face training. MAVAS-R-ID scores showed change in staff attitude to ‘medication management’ domain was statistically significant ( p < 0.05). Psychotropic knowledge questionnaire showed statistically significant post-training improvement in correct responses ( p < 0.05). Process evaluation data showed that SPECTROM was acceptable, applicable, practical, and relevant to staff practice, and helped to improve self-reflection, knowledge, and support to PwID. SPECTROM is a useful training that helps to change the support staff’s attitude toward CB and improve their knowledge of psychotropic medications.

Suggested Citation

  • Shoumitro (Shoumi) Deb & Bharati Limbu & Gemma Unwin & Linda Woodcock & Vivien Cooper & Michael Fullerton, 2021. "Short-Term Psycho-Education for Caregivers to Reduce Overmedication of People with Intellectual Disabilities (SPECTROM): Development and Field Testing," IJERPH, MDPI, vol. 18(24), pages 1-15, December.
  • Handle: RePEc:gam:jijerp:v:18:y:2021:i:24:p:13161-:d:701851
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    References listed on IDEAS

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    1. Bharati Limbu & Gemma Unwin & Shoumitro (Shoumi) Deb, 2021. "Comprehensive Assessment of Triggers for Behaviours of Concern Scale (CATS): Initial Development," IJERPH, MDPI, vol. 18(20), pages 1-33, October.
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    Cited by:

    1. Gerda de Kuijper & Joke de Haan & Shoumitro Deb & Rohit Shankar, 2022. "Withdrawing Antipsychotics for Challenging Behaviours in Adults with Intellectual Disabilities: Experiences and Views of Experts by Experience," IJERPH, MDPI, vol. 19(23), pages 1-10, November.
    2. Shoumitro (Shoumi) Deb & Bharati Limbu & Gemma L. Unwin & Tim Weaver, 2022. "Causes of and Alternatives to Medication for Behaviours That Challenge in People with Intellectual Disabilities: Direct Care Providers’ Perspectives," IJERPH, MDPI, vol. 19(16), pages 1-14, August.

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    2. Shoumitro (Shoumi) Deb & Bharati Limbu & Gemma L. Unwin & Tim Weaver, 2022. "Causes of and Alternatives to Medication for Behaviours That Challenge in People with Intellectual Disabilities: Direct Care Providers’ Perspectives," IJERPH, MDPI, vol. 19(16), pages 1-14, August.

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