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Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis

Author

Listed:
  • Courtney Ryder

    (College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
    Flinders Health and Medical Research Institute, Flinders University, Adelaide, SA 5001, Australia
    The George Institute for Global Health Australia, University of New South Wales (UNSW), Missenden Rd., Sydney, NSW 2052, Australia
    School of Population Health, University of New South Wales (UNSW), Sydney, NSW 2052, Australia)

  • Jacqueline H. Stephens

    (College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
    Flinders Health and Medical Research Institute, Flinders University, Adelaide, SA 5001, Australia)

  • Shahid Ullah

    (College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
    Flinders Health and Medical Research Institute, Flinders University, Adelaide, SA 5001, Australia)

  • Julieann Coombes

    (The George Institute for Global Health Australia, University of New South Wales (UNSW), Missenden Rd., Sydney, NSW 2052, Australia)

  • Nayia Cominos

    (College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia)

  • Patrick Sharpe

    (Far West Community Partnerships, Ceduna, SA 5690, Australia)

  • Shane D’Angelo

    (College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
    Flinders Health and Medical Research Institute, Flinders University, Adelaide, SA 5001, Australia)

  • Darryl Cameron

    (Moorundi Aboriginal Community Controlled Health Service, Lot 1 Wharf Road, Murray Bridge, SA 5253, Australia)

  • Colleen Hayes

    (College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
    Flinders Health and Medical Research Institute, Flinders University, Adelaide, SA 5001, Australia)

  • Keziah Bennett-Brook

    (The George Institute for Global Health Australia, University of New South Wales (UNSW), Missenden Rd., Sydney, NSW 2052, Australia)

  • Tamara Mackean

    (College of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia
    Flinders Health and Medical Research Institute, Flinders University, Adelaide, SA 5001, Australia
    The George Institute for Global Health Australia, University of New South Wales (UNSW), Missenden Rd., Sydney, NSW 2052, Australia)

Abstract

(1) Background: In healthcare settings, patient-reported outcome measures (PROMs) and surveys are accepted, patient-centered measures that provide qualitative information on dimensions of health and wellbeing. The level of psychometric assessment and engagement with end users for their design can vary significantly. This scoping review describes the psychometric and community engagement processes for PROMs and surveys developed for Aboriginal and Torres Strait Islander communities. (2) Methods: The PRISMA ScR guidelines for scoping reviews were followed, aimed at those PROMs and surveys that underwent psychometric assessment. The Aboriginal and Torres Strait Islander Quality Appraisal Tool and a narrative synthesis approach were used. (3) Results: Of 1080 articles, 14 were eligible for review. Most articles focused on a validity assessment of PROMs and surveys, with reliability being less common. Face validity with Aboriginal and Torres Strait Islander communities was reported in most studies, with construct validity through exploratory factor analyses. Methodological design risks were identified in the majority of studies, notably the absence of explicit Indigenous knowledges. Variability existed in the development of PROMs and surveys for Aboriginal and Torres Strait Islander communities. (4) Conclusions: Improvement in inclusion of Indigenous knowledges and research approaches is needed to ensure relevance and appropriate PROM structures. We provide suggestions for research teams to assist in future design.

Suggested Citation

  • Courtney Ryder & Jacqueline H. Stephens & Shahid Ullah & Julieann Coombes & Nayia Cominos & Patrick Sharpe & Shane D’Angelo & Darryl Cameron & Colleen Hayes & Keziah Bennett-Brook & Tamara Mackean, 2022. "Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis," IJERPH, MDPI, vol. 19(16), pages 1-13, August.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:16:p:10354-:d:892862
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    References listed on IDEAS

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    1. Le Grande, M. & Ski, C.F. & Thompson, D.R. & Scuffham, P. & Kularatna, S. & Jackson, A.C. & Brown, A., 2017. "Social and emotional wellbeing assessment instruments for use with Indigenous Australians: A critical review," Social Science & Medicine, Elsevier, vol. 187(C), pages 164-173.
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