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Quality of Life in the First Year of Cancer Diagnosis among Aboriginal and Non-Aboriginal People Living in Regional and Remote Areas of Australia

Author

Listed:
  • Elaina Elder-Robinson

    (School of Public Health, Faculty of Medicine, The University of Queensland, Herston, QLD 4006, Australia
    Menzies School of Health Research, Charles Darwin University, Casuarina, NT 0810, Australia)

  • Abbey Diaz

    (School of Public Health, Faculty of Medicine, The University of Queensland, Herston, QLD 4006, Australia
    Menzies School of Health Research, Charles Darwin University, Casuarina, NT 0810, Australia)

  • Kirsten Howard

    (Menzies Centre for Health Policy and Economics, School of Public Health, University of Sydney, Sydney, NSW 2006, Australia)

  • Darshit Rajeshkumar Parikh

    (School of Psychological and Clinical Sciences, Charles Darwin University, Causarina, NT 0810, Australia)

  • Giam Kar

    (Alan Walker Cancer Care Centre, Royal Darwin Hospital, Casuarina, NT 0810, Australia)

  • Gail Garvey

    (School of Public Health, Faculty of Medicine, The University of Queensland, Herston, QLD 4006, Australia
    Menzies School of Health Research, Charles Darwin University, Casuarina, NT 0810, Australia)

Abstract

Little is known of the quality of life (QoL) of cancer patients in the Northern Territory (NT) of Australia, where healthcare delivery is geographically challenged. This exploratory study describes QoL among Aboriginal and non-Aboriginal cancer patients in the NT, in the first year of diagnosis. Participants were recruited from the only cancer care centre in the NT and completed the Assessment of Quality-of-Life questionnaire (AQoL-4D). The results were descriptively analysed. The participants’ (n = 63; mean age 58.8 years) mean AQoL utility score was 0.72 (SD 0.26); patients scored lowest in the relationships and mental health dimensions of the questionnaire (mean 0.89, SD 0.19, and 0.89, SD 0.17, respectively). Participants living in remote and very remote areas (46%) reported higher QoL scores, compared with participants in the outer regional capital city of the NT in the overall (mean 0.76, SD 0.22 and 0.78, SD 0.20 vs. 0.67, SD 0.29, respectively), and mental health dimensions (mean 0.92, SD 0.09 and mean 0.94, SD 0.06 vs. 0.85, SD 0.22, respectively). The findings were suggestive of clinically meaningful differences across socioeconomic groups, cancer and treatment types, and comorbidity status. Mean QoL scores were consistent with previous reports in other Australian cancer cohorts. The findings suggest a need to support cancer patients’ mental health and relationships during the diagnosis and treatment phase of their cancer journey.

Suggested Citation

  • Elaina Elder-Robinson & Abbey Diaz & Kirsten Howard & Darshit Rajeshkumar Parikh & Giam Kar & Gail Garvey, 2021. "Quality of Life in the First Year of Cancer Diagnosis among Aboriginal and Non-Aboriginal People Living in Regional and Remote Areas of Australia," IJERPH, MDPI, vol. 19(1), pages 1-10, December.
    • Handle: RePEc:gam:jijerp:v:19:y:2021:i:1:p:330-:d:713576
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    References listed on IDEAS

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    1. Kaley Butten & Peter A. Newcombe & Anne B. Chang & Jeanie K. Sheffield & Kerry-Ann F. O’Grady & Newell W. Johnson & Neil King & Maree Toombs, 2021. "Concepts of Health-Related Quality of Life of Australian Aboriginal and Torres Strait Islander Children: Parent Perceptions," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 16(4), pages 1653-1671, August.
    2. Le Grande, M. & Ski, C.F. & Thompson, D.R. & Scuffham, P. & Kularatna, S. & Jackson, A.C. & Brown, A., 2017. "Social and emotional wellbeing assessment instruments for use with Indigenous Australians: A critical review," Social Science & Medicine, Elsevier, vol. 187(C), pages 164-173.
    3. Gail Garvey & Kate Anderson & Alana Gall & Tamara L. Butler & Joan Cunningham & Lisa J. Whop & Michelle Dickson & Julie Ratcliffe & Alan Cass & Allison Tong & Brian Arley & Kirsten Howard, 2021. "What Matters 2 Adults (WM2Adults): Understanding the Foundations of Aboriginal and Torres Strait Islander Wellbeing," IJERPH, MDPI, vol. 18(12), pages 1-21, June.
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    Cited by:

    1. Taylor, Kevin & Ratcliffe, Julie & Bessarab, Dawn & Smith, Kate, 2023. "Valuing indigenous quality of life: A review of preference-based quality of life instruments and elicitation techniques with global older indigenous populations," Social Science & Medicine, Elsevier, vol. 336(C).

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