Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Patients with Rare Diseases in Selected European Countries
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- Norah L. Crossnohere & Ryan Fischer & Andrew Lloyd & Lisa A. Prosser & John F. P. Bridges, 2021. "Assessing the Appropriateness of the EQ-5D for Duchenne Muscular Dystrophy: A Patient-Centered Study," Medical Decision Making, , vol. 41(2), pages 209-221, February.
- Benjamin M. Craig & Wolfgang Greiner & Derek S. Brown & Bryce B. Reeve, 2016. "Valuation of Child Health‐Related Quality of Life in the United States," Health Economics, John Wiley & Sons, Ltd., vol. 25(6), pages 768-777, June.
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Keywords
health-related quality of life; EQ-5D-5L; caregivers; rare diseases; informal care; caregiver burden;All these keywords.
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