IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v19y2022i10p6248-d820399.html
   My bibliography  Save this article

Young Carer Perception of Control: Results of a Phenomenology with a Mixed Sample of Young Carers Accessing Support and Unknown to Services

Author

Listed:
  • Ed Janes

    (Wales Institute of Social and Economic Research and Data (WISERD), Cardiff University, Spark, Maindy Rd., Cathays, Cardiff CF24 4HQ, UK)

Abstract

Identification challenges have resulted in young carers research largely being conducted with those who access support. Positive and negative impacts have been evidenced but there remains little consideration of the wider population. This phenomenology defines young carers as a spectrum of children with different experiences and aims to study the larger group. Participants were recruited from schools and projects, resulting in a mixed sample of young carers who were accessing support but also those who were unknown to services. Participants attended three interviews that initially gathered data on their caring role and family circumstances, before focusing on their health and well-being in the context of change. All interviews were transcribed and analysed at a whole-text and in-depth level to identify shared understanding. A study of the wider spectrum enabled the emergence of perception of control over their caring responsibilities as key to routine development. Although high levels of control helped some participants manage their roles, threats to control were identified, including instability in the care receiver’s condition, excessive caring and medical tasks. The original findings demonstrate how researching the wider spectrum can aid understanding of problematic care, and highlights the importance of recruiting young carers as a hard-to-reach group.

Suggested Citation

  • Ed Janes, 2022. "Young Carer Perception of Control: Results of a Phenomenology with a Mixed Sample of Young Carers Accessing Support and Unknown to Services," IJERPH, MDPI, vol. 19(10), pages 1-16, May.
  • Handle: RePEc:gam:jijerp:v:19:y:2022:i:10:p:6248-:d:820399
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/19/10/6248/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/19/10/6248/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Nagl-Cupal, Martin & Prajo, Natasa, 2019. "It is something special: How children and their parents experience a camp for young people who care for a parent with a severe physical illness," Children and Youth Services Review, Elsevier, vol. 107(C).
    2. Katrina Lloyd, 2013. "Happiness and Well-Being of Young Carers: Extent, Nature and Correlates of Caring Among 10 and 11 Year Old School Children," Journal of Happiness Studies, Springer, vol. 14(1), pages 67-80, March.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Francesco Barbabella & Lennart Magnusson & Licia Boccaletti & Giulia Casu & Valentina Hlebec & Irena Bolko & Feylyn Lewis & Renske Hoefman & Rosita Brolin & Sara Santini & Marco Socci & Barbara D’Amen, 2023. "Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries: Lessons Learned from the ME-WE Project," IJERPH, MDPI, vol. 20(6), pages 1-20, March.
    2. Lauren Donnan & Janet S. Gaffney & Toni Bruce, 2023. "Voices from the Margins: Aotearoa/New Zealand Young Carers Reflect on Their Experiences," IJERPH, MDPI, vol. 20(15), pages 1-20, August.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Bou, Camille, 2023. "Factors associated with the quality-of-life of young unpaid carers: a systematic review of the evidence from 2003 to 2019," LSE Research Online Documents on Economics 118357, London School of Economics and Political Science, LSE Library.
    2. Amy Warhurst & Sarah Bayless & Emma Maynard, 2022. "Teachers’ Perceptions of Supporting Young Carers in Schools: Identifying Support Needs and the Importance of Home–School Relationships," IJERPH, MDPI, vol. 19(17), pages 1-18, August.
    3. Camille Bou, 2023. "Factors Associated with the Quality-of-Life of Young Unpaid Carers: A Systematic Review of the Evidence from 2003 to 2019," IJERPH, MDPI, vol. 20(6), pages 1-15, March.
    4. Cho, Esther Yin-Nei & Yu, Fuk-Yuen, 2020. "A review of measurement tools for child wellbeing," Children and Youth Services Review, Elsevier, vol. 119(C).
    5. Giulia Casu & Valentina Hlebec & Licia Boccaletti & Irena Bolko & Alessandra Manattini & Elizabeth Hanson, 2021. "Promoting Mental Health and Well-Being among Adolescent Young Carers in Europe: A Randomized Controlled Trial Protocol," IJERPH, MDPI, vol. 18(4), pages 1-23, February.
    6. Jade Pilato & Géraldine Dorard & Basilie Chevrier & Agnes Leu & Aurélie Untas, 2022. "Quality of Life of Adolescents Facing a Parental Illness: A Person-Oriented Approach," IJERPH, MDPI, vol. 19(13), pages 1-17, June.
    7. Russell, Helen & Smyth, Emer, 2024. "Caregiving among Young Adults in Ireland," Research Series, Economic and Social Research Institute (ESRI), number RS168.
    8. Frech, Marianne & Wepf, Hannah & Nagl-Cupal, Martin & Becker, Saul & Leu, Agnes, 2021. "Ready and able? Professional awareness and responses to young carers in Switzerland," Children and Youth Services Review, Elsevier, vol. 126(C).
    9. Myra Hamilton & Gerry Redmond, 2020. "Are Young Carers Less Engaged in School than Non-Carers? Evidence from a Representative Australian Study," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 13(1), pages 33-49, February.
    10. Mansi Jain & Gagan Deep Sharma & Mandeep Mahendru, 2019. "Can I Sustain My Happiness? A Review, Critique and Research Agenda for Economics of Happiness," Sustainability, MDPI, vol. 11(22), pages 1-36, November.
    11. Katrina Lloyd & Lesley Emerson, 2017. "(Re)examining the Relationship Between Children’s Subjective Wellbeing and Their Perceptions of Participation Rights," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 10(3), pages 591-608, September.
    12. Hinke M. van der Werf & Wolter Paans & Geertjan Emmens & Anneke L. Francke & Petrie F. Roodbol & Marie Louise A. Luttik, 2020. "Expectations and Prospects of Young Adult Caregivers Regarding the Support of Professionals: A Qualitative Focus Group Study," IJERPH, MDPI, vol. 17(12), pages 1-11, June.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:19:y:2022:i:10:p:6248-:d:820399. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.