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Young Carer Perception of Control: Results of a Phenomenology with a Mixed Sample of Young Carers Accessing Support and Unknown to Services

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  • Ed Janes

    (Wales Institute of Social and Economic Research and Data (WISERD), Cardiff University, Spark, Maindy Rd., Cathays, Cardiff CF24 4HQ, UK)

Abstract

Identification challenges have resulted in young carers research largely being conducted with those who access support. Positive and negative impacts have been evidenced but there remains little consideration of the wider population. This phenomenology defines young carers as a spectrum of children with different experiences and aims to study the larger group. Participants were recruited from schools and projects, resulting in a mixed sample of young carers who were accessing support but also those who were unknown to services. Participants attended three interviews that initially gathered data on their caring role and family circumstances, before focusing on their health and well-being in the context of change. All interviews were transcribed and analysed at a whole-text and in-depth level to identify shared understanding. A study of the wider spectrum enabled the emergence of perception of control over their caring responsibilities as key to routine development. Although high levels of control helped some participants manage their roles, threats to control were identified, including instability in the care receiver’s condition, excessive caring and medical tasks. The original findings demonstrate how researching the wider spectrum can aid understanding of problematic care, and highlights the importance of recruiting young carers as a hard-to-reach group.

Suggested Citation

  • Ed Janes, 2022. "Young Carer Perception of Control: Results of a Phenomenology with a Mixed Sample of Young Carers Accessing Support and Unknown to Services," IJERPH, MDPI, vol. 19(10), pages 1-16, May.
  • Handle: RePEc:gam:jijerp:v:19:y:2022:i:10:p:6248-:d:820399
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    References listed on IDEAS

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    1. Nagl-Cupal, Martin & Prajo, Natasa, 2019. "It is something special: How children and their parents experience a camp for young people who care for a parent with a severe physical illness," Children and Youth Services Review, Elsevier, vol. 107(C).
    2. Katrina Lloyd, 2013. "Happiness and Well-Being of Young Carers: Extent, Nature and Correlates of Caring Among 10 and 11 Year Old School Children," Journal of Happiness Studies, Springer, vol. 14(1), pages 67-80, March.
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    Cited by:

    1. Francesco Barbabella & Lennart Magnusson & Licia Boccaletti & Giulia Casu & Valentina Hlebec & Irena Bolko & Feylyn Lewis & Renske Hoefman & Rosita Brolin & Sara Santini & Marco Socci & Barbara D’Amen, 2023. "Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries: Lessons Learned from the ME-WE Project," IJERPH, MDPI, vol. 20(6), pages 1-20, March.
    2. Lauren Donnan & Janet S. Gaffney & Toni Bruce, 2023. "Voices from the Margins: Aotearoa/New Zealand Young Carers Reflect on Their Experiences," IJERPH, MDPI, vol. 20(15), pages 1-20, August.

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