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Use of mHealth Technology for Patient-Reported Outcomes in Community-Dwelling Adults with Acquired Brain Injuries: A Scoping Review

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  • Shannon B. Juengst

    (UT Southwestern Medical Center, Department of Physical Medicine & Rehabilitation, Dallas, TX 75390, USA
    UT Southwestern Medical Center, Department of Applied Clinical Research, Dallas, TX 75390, USA)

  • Lauren Terhorst

    (Department of Occupational Therapy, University of Pittsburgh, Pittsburgh, PA 15219, USA)

  • Andrew Nabasny

    (UT Southwestern Medical Center, Department of Physical Medicine & Rehabilitation, Dallas, TX 75390, USA
    UT Southwestern Medical Center, Department of Applied Clinical Research, Dallas, TX 75390, USA)

  • Tracey Wallace

    (Shepherd Center, Atlanta, GA 30309, USA)

  • Jennifer A. Weaver

    (Department of Clinical Research & Leadership, George Washington University, Washington, DC 20006, USA)

  • Candice L. Osborne

    (UT Southwestern Medical Center, Department of Physical Medicine & Rehabilitation, Dallas, TX 75390, USA)

  • Suzanne Perea Burns

    (School of Occupational Therapy, Texas Woman’s University, Denton, TX 76204, USA)

  • Brittany Wright

    (UT Southwestern Medical Center, Department of Physical Medicine & Rehabilitation, Dallas, TX 75390, USA
    UT Southwestern Medical Center, Department of Applied Clinical Research, Dallas, TX 75390, USA)

  • Pey-Shan Wen

    (Department of Occupational Therapy, Georgia State University, Atlanta, GA 30303, USA)

  • Chung-Lin Novelle Kew

    (UT Southwestern Medical Center, Department of Physical Medicine & Rehabilitation, Dallas, TX 75390, USA
    UT Southwestern Medical Center, Department of Applied Clinical Research, Dallas, TX 75390, USA)

  • John Morris

    (Shepherd Center, Atlanta, GA 30309, USA)

Abstract

The purpose of our scoping review was to describe the current use of mHealth technology for long-term assessment of patient-reported outcomes in community-dwelling individuals with acquired brain injury (ABI). Following PRISMA guidelines, we conducted a scoping review of literature meeting these criteria: (1) civilians or military veterans, all ages; (2) self-reported or caregiver-reported outcomes assessed via mobile device in the community (not exclusively clinic/hospital); (3) published in English; (4) published in 2015–2019. We searched Ovid MEDLINE(R) < 1946 to 16 August 2019, MEDLINE InProcess, EPub, Embase, and PsycINFO databases for articles. Thirteen manuscripts representing 12 distinct studies were organized by type of ABI [traumatic brain injury (TBI) and stroke] to extract outcomes, mHealth technology used, design, and inclusion of ecological momentary assessment (EMA). Outcomes included post-concussive, depressive, and affective symptoms, fatigue, daily activities, stroke risk factors, and cognitive exertion. Overall, collecting patient-reported outcomes via mHealth was feasible and acceptable in the chronic ABI population. Studies consistently showed advantage for using EMA despite variability in EMA timing/schedules. To ensure best clinical measurement, research on post-ABI outcomes should consider EMA designs (versus single time-point assessments) that provide the best timing schedules for their respective aims and outcomes and that leverage mHealth for data collection.

Suggested Citation

  • Shannon B. Juengst & Lauren Terhorst & Andrew Nabasny & Tracey Wallace & Jennifer A. Weaver & Candice L. Osborne & Suzanne Perea Burns & Brittany Wright & Pey-Shan Wen & Chung-Lin Novelle Kew & John M, 2021. "Use of mHealth Technology for Patient-Reported Outcomes in Community-Dwelling Adults with Acquired Brain Injuries: A Scoping Review," IJERPH, MDPI, vol. 18(4), pages 1-23, February.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:4:p:2173-:d:504206
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    References listed on IDEAS

    as
    1. Michael Jones & John Morris & Frank Deruyter, 2018. "Mobile Healthcare and People with Disabilities: Current State and Future Needs," IJERPH, MDPI, vol. 15(3), pages 1-13, March.
    2. John Morris & Mike Jones & Nicole Thompson & Tracey Wallace & Frank DeRuyter, 2019. "Clinician Perspectives on mRehab Interventions and Technologies for People with Disabilities in the United States: A National Survey," IJERPH, MDPI, vol. 16(21), pages 1-11, October.
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