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Challenges and Research Priorities for Dementia Care in Malaysia from the Perspective of Health and Allied Health Professionals

Author

Listed:
  • Roshaslina Rosli

    (Ageing and Age-Associated Disorder Research Group, University of Malaya, Kuala Lumpur 50603, Malaysia)

  • Michaela Goodson

    (Research Department, Newcastle University Medicine Malaysia, Gelang Patah 79200, Malaysia)

  • Maw Pin Tan

    (Ageing and Age-Associated Disorder Research Group, University of Malaya, Kuala Lumpur 50603, Malaysia)

  • Devi Mohan

    (Global Public Health, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia, Subang Jaya 47500, Malaysia)

  • Daniel Reidpath

    (Global Public Health, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia, Subang Jaya 47500, Malaysia)

  • Pascal Allotey

    (United Nations University International Institute for Global Health, Cheras 56000, Malaysia)

  • Shahrul Kamaruzzaman

    (Ageing and Age-Associated Disorder Research Group, University of Malaya, Kuala Lumpur 50603, Malaysia)

  • Ai-Vyrn Chin

    (Ageing and Age-Associated Disorder Research Group, University of Malaya, Kuala Lumpur 50603, Malaysia)

  • Louise Robinson

    (Population Health Sciences Institute, Campus of Ageing and Vitality Newcastle University, Newcastle upon Tyne NE1 7RU, UK)

Abstract

Few studies to date have evaluated dementia care in Malaysia, and the focus of studies has primarily been on epidemiological and laboratory research. In this study, we aimed to identify potential challenges for the delivery of dementia care in Malaysia and priorities for research and enhancing existing dementia care. This study used thematic analysis to evaluate the open and focus group workshop discussions guided by semi-structured questions. Triangulation of the collected data (sticky notes, collated field notes, and transcripts of discussions) was achieved through stakeholder consensus agreement during a workshop held in 2017. Five main themes as priorities for dementia care were identified: (1) availability of a valued multi-disciplinary care service, (2) accessibility of training to provide awareness, (3) the functionality of the governance in establishing regulation and policy to empower care services, (4) perceived availability and accessibility of research data, and (5) influence of cultural uniqueness. The findings of this study seek to enhance existing dementia care in Malaysia but have potential application for other low and middle-income countries with a similar social and health care set up. The constructed relationship between themes also tries to tackle the challenges in a more efficient and effective manner, as none of these aforementioned issues are standalone challenges. In addition, we demonstrated how a carefully constructed workshop with defined aims and objectives can provide a useful analysis tool to evaluate health and social care challenges in a multidisciplinary forum.

Suggested Citation

  • Roshaslina Rosli & Michaela Goodson & Maw Pin Tan & Devi Mohan & Daniel Reidpath & Pascal Allotey & Shahrul Kamaruzzaman & Ai-Vyrn Chin & Louise Robinson, 2021. "Challenges and Research Priorities for Dementia Care in Malaysia from the Perspective of Health and Allied Health Professionals," IJERPH, MDPI, vol. 18(21), pages 1-16, October.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:21:p:11010-:d:660413
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    References listed on IDEAS

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    1. Morgan, Debra G. & Semchuk, Karen M. & Stewart, Norma J. & D'Arcy, Carl, 2002. "Rural families caring for a relative with dementia: barriers to use of formal services," Social Science & Medicine, Elsevier, vol. 55(7), pages 1129-1142, October.
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    Cited by:

    1. Nurul Izzah Sodri & Mohamed-Syarif Mohamed-Yassin & Mariam Mohamad & Noorhida Baharudin, 2022. "Confidence in Dementia Management and Its Associated Factors among Primary Care Doctors in Malaysia," IJERPH, MDPI, vol. 19(16), pages 1-13, August.

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