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Rural families caring for a relative with dementia: barriers to use of formal services

Author

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  • Morgan, Debra G.
  • Semchuk, Karen M.
  • Stewart, Norma J.
  • D'Arcy, Carl

Abstract

Planning for the care of increasing numbers of elderly persons with dementia has become an urgent health services concern in Canada and elsewhere, yet little is known about the challenges of providing appropriate dementia care in rural areas. A community-based approach was used to obtain input from decision-makers and others to develop the objectives and design for a study of rural dementia care in the province of Saskatchewan, Canada. The resulting study design, which used both qualitative and quantitative methods, was then pilot tested in one rural health district (16,000Â km2, population 20,000). This paper describes the study development process and reports selected findings from focus groups conducted with home care staff and family members, focussing on the theme of low use of formal supportive services such as home care and support groups by family caregivers. Participants identified eight barriers to the use of formal services, described consequences of low service use, and suggested strategies for addressing this concern.

Suggested Citation

  • Morgan, Debra G. & Semchuk, Karen M. & Stewart, Norma J. & D'Arcy, Carl, 2002. "Rural families caring for a relative with dementia: barriers to use of formal services," Social Science & Medicine, Elsevier, vol. 55(7), pages 1129-1142, October.
    • Handle: RePEc:eee:socmed:v:55:y:2002:i:7:p:1129-1142
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    Cited by:

    1. Nylen, Kirk & Sridharan, Sanjeev, 2020. "Experiments in evaluation capacity building: Enhancing brain disorders research impact in Ontario," Evaluation and Program Planning, Elsevier, vol. 80(C).
    2. Rapp, Thomas & Grand, Alain & Cantet, Christelle & Andrieu, Sandrine & Coley, Nicola & Portet, Florence & Vellas, Bruno, 2011. "Public financial support receipt and non-medical resource utilization in Alzheimer's disease results from the PLASA study," Social Science & Medicine, Elsevier, vol. 72(8), pages 1310-1316, April.
    3. Alexandra J. Werntz & Chad S. Dodson & Alexander J. Schiller & Catherine D. Middlebrooks & Ellen Phipps, 2015. "Mental Health in Rural Caregivers of Persons With Dementia," SAGE Open, , vol. 5(4), pages 21582440156, December.
    4. Arasanz, Carla & Nylen, Kirk, 2020. "The theory of change of the evaluation support program: Enhancing the role of community organizations in providing an ecology of care for neurological disorders," Evaluation and Program Planning, Elsevier, vol. 80(C).
    5. Roshaslina Rosli & Michaela Goodson & Maw Pin Tan & Devi Mohan & Daniel Reidpath & Pascal Allotey & Shahrul Kamaruzzaman & Ai-Vyrn Chin & Louise Robinson, 2021. "Challenges and Research Priorities for Dementia Care in Malaysia from the Perspective of Health and Allied Health Professionals," IJERPH, MDPI, vol. 18(21), pages 1-16, October.
    6. Herron, R.V. & Rosenberg, M.W., 2017. "“Not there yet”: Examining community support from the perspective of people with dementia and their partners in care," Social Science & Medicine, Elsevier, vol. 173(C), pages 81-87.

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