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Genetic Testing for Cancer Risk: Is the Community Willing to Pay for It?

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  • Azimatun Noor Aizuddin

    (Department of Community Health, Faculty of Medicine, Universiti Kebangsaan Malaysia, Jalan Yaacob Latif, Bandar Tun Razak, Cheras, Kuala Lumpur 56000, Malaysia)

  • Abdul Rahman Ramdzan

    (Department of Community Health, Faculty of Medicine, Universiti Kebangsaan Malaysia, Jalan Yaacob Latif, Bandar Tun Razak, Cheras, Kuala Lumpur 56000, Malaysia
    Department of Public Health Medicine, University of Malaysia Sabah, Jalan UMS, Kota Kinabalu 88400, Malaysia)

  • Sharifah Azween Syed Omar

    (Faculty of Education, Universiti Kebangsaan Malaysia, Bangi 43600, Malaysia
    Department of Paediatrics, Faculty of Medicine, Universiti Kebangsaan Malaysia, Jalan Yaacob Latif, Bandar Tun Razak, Cheras, Kuala Lumpur 56000, Malaysia)

  • Zuria Mahmud

    (Faculty of Education, Universiti Kebangsaan Malaysia, Bangi 43600, Malaysia)

  • Zarina A. Latiff

    (Department of Paediatrics, Faculty of Medicine, Universiti Kebangsaan Malaysia, Jalan Yaacob Latif, Bandar Tun Razak, Cheras, Kuala Lumpur 56000, Malaysia)

  • Salleh Amat

    (Faculty of Education, Universiti Kebangsaan Malaysia, Bangi 43600, Malaysia)

  • Keng Wee Teik

    (Genetic Department, Hospital Kuala Lumpur, Jalan Pahang, Kuala Lumpur 50586, Malaysia)

  • Ch’ng Gaik Siew

    (Genetic Department, Hospital Kuala Lumpur, Jalan Pahang, Kuala Lumpur 50586, Malaysia)

  • Haniza Rais

    (Department of Education Psychology & Counseling, International Islamic University Malaysia, Jalan Gombak, Selangor 53100, Malaysia)

  • Syed Mohamed Aljunid

    (Department of Community Health, Faculty of Medicine, Universiti Kebangsaan Malaysia, Jalan Yaacob Latif, Bandar Tun Razak, Cheras, Kuala Lumpur 56000, Malaysia
    Department of Health Policy and Management, Kuwait University, 320 St, Hawally 13110, Kuwait)

Abstract

With the increasing number of cancer cases worldwide, genetic testing for familiar cancers seems inevitable, yet little is known on population interest and the monetary value for cancer genetic risk information. The current study aimed to determine the willingness to undergo and pay for cancer genetic testing among the Malaysian population. A self-administered questionnaire was distributed to cancer patients and their family members in the oncology and daycare units in several government hospitals. Of 641 respondents (354 patients, 287 family members), 267 (41.7%) were willing to undergo cancer genetic testing. The median that respondents were willing to pay was USD 48.31 (MYR 200.00) IQR USD 96.91 (MYR 400), while 143 (22.3%) respondents were willing to pay a shared cost with the insurance company. Regression analysis identified independent positive predictors of willingness to pay as respondent’s status as a family member, high education level, and willingness to undergo cancer genetic testing in general, while in patients, female gender and high level of education were identified as independent positive predictors. Generally, the population needs more information to undergo and pay for cancer genetic testing. This will increase the utilization of the services offered, and with cost-sharing practices with the provider, it can be implemented population-wide.

Suggested Citation

  • Azimatun Noor Aizuddin & Abdul Rahman Ramdzan & Sharifah Azween Syed Omar & Zuria Mahmud & Zarina A. Latiff & Salleh Amat & Keng Wee Teik & Ch’ng Gaik Siew & Haniza Rais & Syed Mohamed Aljunid, 2021. "Genetic Testing for Cancer Risk: Is the Community Willing to Pay for It?," IJERPH, MDPI, vol. 18(16), pages 1-11, August.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:16:p:8752-:d:617476
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    References listed on IDEAS

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    1. Wang, Catharine & Gonzalez, Richard & Merajver, Sofia D., 2004. "Assessment of genetic testing and related counseling services: current research and future directions," Social Science & Medicine, Elsevier, vol. 58(7), pages 1427-1442, April.
    2. Drummond, Michael F. & Sculpher, Mark J. & Claxton, Karl & Stoddart, Greg L. & Torrance, George W., 2015. "Methods for the Economic Evaluation of Health Care Programmes," OUP Catalogue, Oxford University Press, edition 4, number 9780199665884.
    3. Peter J. Neumann & Joshua T. Cohen & James K. Hammitt & Thomas W. Concannon & Hannah R. Auerbach & ChiHui Fang & David M. Kent, 2012. "Willingness‐to‐pay for predictive tests with no immediate treatment implications: a survey of US residents," Health Economics, John Wiley & Sons, Ltd., vol. 21(3), pages 238-251, March.
    4. Olsen, Jan Abel & Kidholm, Kristian & Donaldson, Cam & Shackley, Phil, 2004. "Willingness to pay for public health care: a comparison of two approaches," Health Policy, Elsevier, vol. 70(2), pages 217-228, November.
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