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Boundary Objects: Engaging and Bridging Needs of People in Participatory Research by Arts-Based Methods

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  • Barbara Groot

    (Amsterdam University Medical Centre, VU Medical Centre, Department Ethics, Law and Medical Humanities, De Boelelaan 1089a, 1081 HV Amsterdam, The Netherlands
    Leyden Academy, Rijnsburgerweg 10, 2333 AA Leiden, The Netherlands
    Leiden University Medical Centre, Leiden University, Albinusdreef 2, 2333 ZA Leiden, The Netherlands)

  • Tineke Abma

    (Amsterdam University Medical Centre, VU Medical Centre, Department Ethics, Law and Medical Humanities, De Boelelaan 1089a, 1081 HV Amsterdam, The Netherlands
    Leyden Academy, Rijnsburgerweg 10, 2333 AA Leiden, The Netherlands
    Leiden University Medical Centre, Leiden University, Albinusdreef 2, 2333 ZA Leiden, The Netherlands)

Abstract

Background: Participatory health research (PHR) is a research approach in which people, including hidden populations, share lived experiences about health inequities to improve their situation through collective action. Boundary objects are produced, using arts-based methods, to be heard by stakeholders. These can bring about dialogue, connection, and involvement in a mission for social justice. This study aims to gain insight into the value and ethical issues of boundary objects that address health inequalities. A qualitative evaluation is conducted on three different boundary objects, created in different participatory studies with marginalized populations (mothers in poverty, psychiatric patients, and unemployed people). A successful boundary object evokes emotions among those who created the objects and those encountering these objects. Such objects move people and create an impulse for change. The more provocative the object, the more people feel triggered to foster change. Boundary objects may cross personal boundaries and could provoke feelings of discomfort and ignorance. Therefore, it is necessary to pay attention to ethics work. Boundary objects that are made by people from hidden populations may spur actions and create influence by improving the understanding of the needs of hidden populations. A dialogue about these needs is an essential step towards social justice.

Suggested Citation

  • Barbara Groot & Tineke Abma, 2021. "Boundary Objects: Engaging and Bridging Needs of People in Participatory Research by Arts-Based Methods," IJERPH, MDPI, vol. 18(15), pages 1-11, July.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:15:p:7903-:d:601532
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    References listed on IDEAS

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    1. Ruey‐Lin Hsiao & Dun‐Hou Tsai & Ching‐Fang Lee, 2012. "Collaborative Knowing: The Adaptive Nature of Cross‐Boundary Spanning," Journal of Management Studies, Wiley Blackwell, vol. 49(3), pages 463-491, May.
    2. Melo, Sara & Bishop, Simon, 2020. "Translating healthcare research evidence into practice: The role of linked boundary objects," Social Science & Medicine, Elsevier, vol. 246(C).
    3. Matthew Hawkins & Mohammad Rezazade, 2012. "Knowledge Boundary Spanning Prcess: Synthesizing Four Spanning Mechanisms," Post-Print hal-01514772, HAL.
    4. Maia Green, 2010. "Making Development Agents: Participation as Boundary Object in International Development," Journal of Development Studies, Taylor & Francis Journals, vol. 46(7), pages 1240-1263.
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    1. Katie Pybus & Jean McEwan & Kayleigh Garthwaite & Maddy Power & Ruth Patrick & Sydnie Corley, 2022. "It’s Our Story: Parents and Carers’ Experiences during the Pandemic," Sociological Research Online, , vol. 27(3), pages 604-674, September.
    2. Barbara Groot & Annyk Haveman & Mireille Buree & Ruud van Zuijlen & Juliette van Zuijlen & Tineke Abma, 2022. "What Patients Prioritize for Research to Improve Their Lives and How Their Priorities Get Dismissed again," IJERPH, MDPI, vol. 19(4), pages 1-15, February.

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